Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 , Would you let Marie Pia know that the only med that worked for me for the Vasculitis is Cytoxan. I know Marie said they would use that as a last resort but it sounds like Coralie needs something more aggressive. Sandy -- Re: CORALIE DISEASE I am sending out a plea for help. Can anyone give some input as to how Marie Pia can help Coralie? I will forward any reply to her personally. She needs all of our good thoughts and prayers right now. I think they are going to try to give her another pulse therapy and start an immunosuppresant. hugs<< Dear ,I worry about Coralie.She's been in flare since 4 weeks in spite of her médications.Immuran 100mg/D, metho 12.5 mg each tuesday.and 10mg of solupred.(no matter the ains...)She 's been decrease solupred since 2 month from 40 to 10 now.But when she has got stress a flare comes.The team of doctors decided yesterday she 'll go back to hospital next week.She'll stop school again.(It'was so hard for her to be accept in this great hight school).The DR. said the traitement are more dangerous than usely.Off course , but what 'll they give to her.She 's got vascularitis since 4 days with 'petechi" on her legs., headhache, stomach etc....I'm afraid about french dr. Can you send me (maybe with help of karen or another member of rpgroup) what kind of médication they can use for Coralie. A sume up of what it's use successfully in USA.So i'll give it to the French DR.In spite of Coralie , the same médications seems working for ben. Good news isn'it ?LOL.Nicolas 'll met the team of Dr. on 27:09:2002.Sorry i'haven't a lot of time to chat with all of the group.AS you know I work ,i prepare my divorce and i look after my 3 "illkids" LOL.I need your help because i'm so "desemparé" ; i want to be sure the 're an alternative for CORALIE.AN ANOTHER THINK TO DO.FriendlyM.P. >>DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
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