Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Crystal--you are having a rough go of it. I can completely empathize with you. My son stopped eating altogether when he got his g-tube. He had just gotten so tired of us nearly forcing food into him that he was just so darned relieved that he didn't have to eat. He stopped gradually after the g-tube and he also has hypersensitivity due to his prematurity (he was 11 weeks early). He doesn't even touch food. the antiobiotic thing is so hard on their intestines. My son (who is almost 3) responds well to liquid acidophilus. I found it online and it helps with the diahrrea. My son is 30 lbs and we give him 10 cc twice a day of a milk free liquid acidophilus (I know I bought it through a yahoo store). It takes about 3 days to work. Ashton's GI doc also put him on Immodium (2.5 cc 2 times a day) to help with diahrrea when on antibiotics. It helped a little. As for the not eating thing... My best advice is to let him enjoy food as much as you can let him. Even if he eats just one meal a day, you are doing a good job. We feed my son all night (rate of 68), during his afternoon nap (rate of 175 and get about 280cc) and then during dinner (rate of 355, get about 155 cc). He is on Peptamen Jr and we add about 2 Tbsp of rice cereal for every 8 oz of formula. You may want to try to feed him a hearty lunch before his nap. The one fabulous thing about the g-tube is that it is easy to get medicine in them. We use the powder enzymes so it all goes in the tube. I have tons of experience with this g-tube thing with a toddler. Email me if you have any questions. I know how hard this can be so don't hesitate to ask questions. mom to Ashton www.babyfergie.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Chrystal, CF is a disheartening illness and it effects the whole family. I hope that tomorrow is a much better day for you. Will eat with other kids? Abby always wants to mimic bigger kids. Just a wishful thought. Gale > Hi all.. > > I am having a very hard time since my sons feeding tube surgery over three > weeks ago. He has not eaten hardly anything. On top of that he was on > antibiotics until surgery then after surgery which he grew out morexlla (small > amount) docs put him on a stronger antibiotic then he got colitis from the > antibiotic so now he can not be on ANYTHING to kill bacteria in lungs....He > has med every six hours for the infection in his colon...side affects of his new > med (no eating,diah you guys know the drill) they have stopped his feeding > tube since he cam down with the colitis and hes barely drinking two resource > boxes a day. The feeding tube has only caused me more strain because he > eats NOTHING..has this ever concerned you parents. I have heard so many > people say the tube is a blessing and I am sure it is for some..I spend all day > long making food for my son, ordering his fav chinese food but he wants > nothing. I am disheartened ..I am sure we all feel this way at some point > ...increased treatments etc. is 2 and half and participates most of the > time but when he doesnt it is really difficult. Thank you for all of your support > in the past. I am having a very difficult evening. thanks fo rlistening. > > Crystal (mother of ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Crystal, I am so sorry things have been so hard. I sure would be very upset if all that had happened to us. I know when had the surgery for g-tube and nissan fundoplication, at first we had some problems. She gagged a lot and refused to swallow solids for a while. She also had to be vented a lot during feeds. At first she did loose a bit but then was able to gain when the tube was working and she was eating. Are they hopeful that you will be able to use the tube soon after the infection is cleared? I sure am sorry that you and are going through all of this. I wish that we could take the problem away somehow. Mom of 5 with CF disheartened Hi all.. I am having a very hard time since my sons feeding tube surgery over three weeks ago. He has not eaten hardly anything. On top of that he was on antibiotics until surgery then after surgery which he grew out morexlla (small amount) docs put him on a stronger antibiotic then he got colitis from the antibiotic so now he can not be on ANYTHING to kill bacteria in lungs....He has med every six hours for the infection in his colon...side affects of his new med (no eating,diah you guys know the drill) they have stopped his feeding tube since he cam down with the colitis and hes barely drinking two resource boxes a day. The feeding tube has only caused me more strain because he eats NOTHING..has this ever concerned you parents. I have heard so many people say the tube is a blessing and I am sure it is for some..I spend all day long making food for my son, ordering his fav chinese food but he wants nothing. I am disheartened ..I am sure we all feel this way at some point ...increased treatments etc. is 2 and half and participates most of the time but when he doesnt it is really difficult. Thank you for all of your support in the past. I am having a very difficult evening. thanks fo rlistening. Crystal (mother of ) ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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