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Hi all..

I am having a very hard time since my sons feeding tube surgery over three

weeks ago. He has not eaten hardly anything. On top of that he was on

antibiotics until surgery then after surgery which he grew out morexlla (small

amount) docs put him on a stronger antibiotic then he got colitis from the

antibiotic so now he can not be on ANYTHING to kill bacteria in lungs....He

has med every six hours for the infection in his colon...side affects of his new

med (no eating,diah you guys know the drill) they have stopped his feeding

tube since he cam down with the colitis and hes barely drinking two resource

boxes a day. The feeding tube has only caused me more strain because he

eats NOTHING..has this ever concerned you parents. I have heard so many

people say the tube is a blessing and I am sure it is for some..I spend all day

long making food for my son, ordering his fav chinese food but he wants

nothing. I am disheartened ..I am sure we all feel this way at some point

....increased treatments etc. is 2 and half and participates most of the

time but when he doesnt it is really difficult. Thank you for all of your

support

in the past. I am having a very difficult evening. thanks fo rlistening.

Crystal (mother of )

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