Re: asthma and cf

[Guest guest]

I don't know if there is actually a test for asthma. My daughter has never

had an attack. She has had situations when she was first diagnosed that she

was wheezing really bad and they gave her a shot and it opened her airways

so she could breath. With asthma I think there are varying degrees just

like there are with CF.

Tina W., mother of , 18yo wcf

Re: asthma and cf

Did they actually do a test do diagnose it, or did they just go off the fact

that he had CF and along with it comes asthma? Has he ever had an asthma

attack? I'm just trying to find out how they medically diagnose. My dad

has asthma, along with his twin sister, and when they have attacks, you know

it. I'm just not seeing the same signs in my daughter as I see with the

other people in my family. She has a cough, but don't all people with CF?

I'm not in denial, but they're just not selling me on the fact that she has

it.

Tracey mom to Sydney almost 3 w/cf

asthma and cf

We were told, way back when was diagnosed with " reactive airway

disease " or asthma, that 50% of cfers have an asthma component to their

illness. One seems to go with the other.

Dori Ownbey... " If I haven't grown up by now, I'm never going to. "

[Guest guest]

Traci is treated for asthma also. She is on Advair and Singulair. She has

never had an attack but I do hear her wheeze when she has an infection.

Sometimes

she has what sounds like a post-nasal drip cough and her doc says that is an

asthma cough.She has also been on prednisone when she is hospitalized on IVs.

[Guest guest]

Hi Tina,

I think you are right here. My daughter was dxed with CF at 8 months, and with

asthma at 9 years. We saw an allergy/asthma specialist and she had allergy

tests (she is highly allergic to many things ie: dust, molds, pollen, grass,

trees, cats, yes dogs (we have always had dogs, she deals with it) She was also

diagnosed with asthma. She wheezes sometimes. I think that if a person wheezes

with exertion or infections they have asthma or Reactive airway disease (RAD) as

they like to call it now. I think RAD and asthma are the same thing. am I

wrong? doesn't wheeze very often, she uses flovent and does pretty well.

Also, like your daughter, she has never had an asthma attack where we had to

rush to the hospital. She has needed to do an extra treatment

(albuterol/Intal)a few times due to wheezing. -oh yeah the allergist put her on

the Intal(cromolyn sodium) w/albuterol instead of normal saline for her

breathing treatments and we have stuck with that, I feel it is really helpful

for . That has done the trick for her,. I guess she has " Mild " asthma.

(oh no here we go again!!)She has been on prednisone a few times, short bursts

for asthma and once for several months for aspergillus.

love,

M

mom of Nick age 21 nocf, age 19 wcf and Lucy age 1, very furry

RE: asthma and cf

I don't know if there is actually a test for asthma. My daughter has never

had an attack.

[Guest guest]

Steph is on Advair daily for her asthma. She used to be on Theodur until a

year ago and they took her off of it and the rest of the year went down hill

from there. She has been doing very well on Advair. She started out on the

500/50 but is now on the 250/50. She only uses an inhaler as needed which I

would say is seldom. Her asthma seems to be under good control.

Tina W.

Re: asthma and cf

Hi Tina,

I think you are right here. My daughter was dxed with CF at 8 months, and

with asthma at 9 years. We saw an allergy/asthma specialist and she had

allergy tests (she is highly allergic to many things ie: dust, molds,

pollen, grass, trees, cats, yes dogs (we have always had dogs, she deals

with it) She was also diagnosed with asthma. She wheezes sometimes. I

think that if a person wheezes with exertion or infections they have asthma

or Reactive airway disease (RAD) as they like to call it now. I think RAD

and asthma are the same thing. am I wrong? doesn't wheeze very

often, she uses flovent and does pretty well. Also, like your daughter, she

has never had an asthma attack where we had to rush to the hospital. She

has needed to do an extra treatment (albuterol/Intal)a few times due to

wheezing. -oh yeah the allergist put her on the Intal(cromolyn sodium)

w/albuterol instead of normal saline for her breathing treatments and we

have stuck with that, I feel it is really helpful for . That has

done the trick for her,. I guess she has " Mild " asthma. (oh no here we go

again!!)She has been on prednisone a few times, short bursts for asthma and

once for several months for aspergillus.

love,

M

mom of Nick age 21 nocf, age 19 wcf and Lucy age 1, very furry

RE: asthma and cf

I don't know if there is actually a test for asthma. My daughter has

never

had an attack.

[Guest guest]

My nephew has asthma. He used to have attacks regularly, but now it is usually

just a cough. It sounds different than a CF cough. Drier.

asthma and cf

We were told, way back when was diagnosed with " reactive airway

disease " or asthma, that 50% of cfers have an asthma component to their illness.

One seems to go with the other.

Dori Ownbey... " If I haven't grown up by now, I'm never going to. "

[Guest guest]

Did they actually do a test do diagnose it, or did they just go off the fact

that he had CF and along with it comes asthma? Has he ever had an asthma

attack? I'm just trying to find out how they medically diagnose. My dad has

asthma, along with his twin sister, and when they have attacks, you know it.

I'm just not seeing the same signs in my daughter as I see with the other people

in my family. She has a cough, but don't all people with CF? I'm not in

denial, but they're just not selling me on the fact that she has it.

Tracey mom to Sydney almost 3 w/cf

asthma and cf

We were told, way back when was diagnosed with " reactive airway

disease " or asthma, that 50% of cfers have an asthma component to their illness.

One seems to go with the other.

Dori Ownbey... " If I haven't grown up by now, I'm never going to. "