Re: newbie - our story & a few questions

[Guest guest]

Hi,

If Tyler still has plagio at 11 months, he will not outgrow it. If he

is a helmet candidate, I would get one ASAP. The sooner you do, the

better the results. There are kindergartners with plagio! My 5.5 year

old has a little, and one of his peers has it even worse.

Best,

-Kathy, mom to age 2 treated since age 12 months, and 5.5

rharvell wrote:

I'm new to the group. It's nice to know we're not alone in our

journey. Tyler will be 12 mos Jul 11. Our pediatrician noticed his

plagio at his 2 month appt. We repositioned and saw some results. She

referred us to a pediatric neurosurgeon who told us not to worry about

it - that his was mild. He also told us that Tyler had torticollis, but

we didn't believe him because his neck tilt wasn't severe like we had

seen in some internet pictures. But we did get even more aggressive

with positioning and saw more results.

Finally, I realized he did have tort and took him to PT. He was in PT

2x a week for almost two months, then 1x a week for a few more months.

All told, about 5.5 months of PT.

In mid-Feb, we went to another pediatric neurosurgeon for another

opinion, since we didn't care much for the first guy. But we got pretty

much the same message... "He will grow out of it, but we can't

guarantee it and we can't say when." They also said, "You don't hear

about kindergartners with plagiocephaly." So, we left the appt deciding

that we weren't going to pursue the helmet (although we did ask him for

a written scrip for one before we left (just in case)). :-)

Well now he is one year old and I can still see that it's there. I know

its mild. You can't really tell from the front. However, when I look at

him in the mirror, I can see that something about his face is slightly

"off." He has a "protrusion" on the back of his head on the left side

and above his left ear a bit. His ears are also misaligned slightly.

We have our evaluation with CT on Fri, Jul 9 at Paramus, NJ. We'll see

whether he's a candidate for the helmet and whether they think he will

grow out of it if we do nothing. I'm concerned though that he won't

grow out of it and I will feel guilty if I didn't do all I could for

him when I had the chance.

I've been seeing that some people post cephalic index numbers and other

such numbers. Will CT give us those numbers for Tyler at his appt?

Also, I was thinking in general about brain & head growth. I know

that the companies tell you that at 2 yrs they can't help you anymore

since brain growth is pretty much complete by 2 yrs. But think about

the size of the head of a 2 yr old and the size of the head of an

adult. Clearly, an adult's head is bigger. So obviously the skull is

still growing after 2 yrs. Doesn't it stand to reason that change can

still happen after 2 yrs? Does anyone know anything more scientific

about this?

Anyway, I've rambled on long enough. Thanks for "listening."