why aren't more people having TP/ICT?

[Guest guest]

Hi all,

Haven't posted in quite awhile. The end of October I had a j-tube placed,

which didn't work properly. I, therefore, had to go back for a second surgery

10 days later to have another feeding tube placed. I was not tolerating the

bolus feedings, they were making me so sick with nausea and vomiting so I had to

go to a feeding pump. I have to feed from 7 a.m. to 8 p.m. every day while

pulling an IV pole around with me. This is the most horrible thing. I wish I

hadn't done it in the first place. I am having a very hard time accepting the

feeding situation.

I have an appointment with Dr. Lowy at the University of Cincinnati in two

weeks to talk about surgical options. Has anyone seen him? Why haven't more of

" us " had the TP/ICT? There are so many of us who suffer from this disease and I

am just curious as to why more of " us " don't have something done about it.

Please give me any advice, information you have. I would greatly

appreciate it.

Thoughts and prayers to all.

T. (Ohio)

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