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Day 7, When to stop electrolyte? Drooling...

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My daughter has refused fluids so we tried the electrolyte recipe.

She does so well on that, that she won't take anything else. She's

been peeing more than ever, (she never pee'd much to begin with),

and this morning she awoke completely saturated in pee from top to

bottom, front to back. Today, I mixed electrolyte with grape juice

and hope to slowly replace the electrolyte with water.

Is there a limit as to how long she should be on the electrolyte or

how much she should get? For a few days, she didn't drink anything,

but I'm thinking she's recovered from that.

Also, I've noticed a lot of drooling which makes me think she's

hungry. I feed her 3-4 times a day at least. Is it normal to have

to feed a child more than that on this diet?

Any help would be appreciated. Thank you!

Cheryl

Mother of Alysson, (almost 5) and Dorthia (20 months-SCD 7 days,

Failure to Thrive)

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Cheryl,

I think you're on track with the fluids, and your idea of slowly replacing the

electrolyte solution with diluted juice is just fine. I imagine her whole system

is adjusting and things will normalize when it comes to the amount of peeing.

Frequent meals is just fine.... in fact, ideal I think, on SCD. I don't know if

the drooling means she hungry... but it is common for new SCD kids to have

raging appetites for a while. It's like their little bodies are going " WOW!!

FINALLY! Some good nutrients!! "

You're doing great... keep it up.

Patti

Day 7, When to stop electrolyte? Drooling...

My daughter has refused fluids so we tried the electrolyte recipe.

She does so well on that, that she won't take anything else. She's

been peeing more than ever, (she never pee'd much to begin with),

and this morning she awoke completely saturated in pee from top to

bottom, front to back. Today, I mixed electrolyte with grape juice

and hope to slowly replace the electrolyte with water.

Is there a limit as to how long she should be on the electrolyte or

how much she should get? For a few days, she didn't drink anything,

but I'm thinking she's recovered from that.

Also, I've noticed a lot of drooling which makes me think she's

hungry. I feed her 3-4 times a day at least. Is it normal to have

to feed a child more than that on this diet?

Any help would be appreciated. Thank you!

Cheryl

Mother of Alysson, (almost 5) and Dorthia (20 months-SCD 7 days,

Failure to Thrive)

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