Re: Eilish update/JULIE

[Guest guest]

, and I thought things were bad here! Thank heavens that Eilish has

YOU for her mother; you must be exhausted and feeling medically abused.

I am so sorry. Do what you think will work, and get some rest, woman!

Love to all of you,

n Rojas

Eilish update

Hi everyone,

I can truly say this is the admission from hell. So many things went

wrong its all swimming in my head. Firstly Eilish and I have spent 14

days in a bay with 10 other kids. None of them had cf but the noise was

the same. Then two 7 foot strips of tiles fell of the bathroom wall and

onto Eilish's foot - not hurt. Had a meeting with the head of nursing

who printed me of the Cf Protocol which states that cfers are not to be

given a separate room unless there is other cfers in the ward who have

PA. So we got no where there. Oh there is so much more my heads

spinning. We have told them we will now have all our admission in a

hospital closer to our home. It doesn't;t have a cf centre attached but

she's only there for IV's, we will still attend the clinic at the other

place. I had so many times where all I could do was cry with the

frustration of it all. I know we could have taken her home but she is

on the eradication of PA programme and that would not have benefited

Eilish. Then this morning two cf patients who are category 5 (PA multi

resistant) were brought into the bay for review which meant just for the

day. We then got the infection control people involved who said as long

as they were as far apart as possible and didn't play together all would

be well. So I took her out and spent the day walking the streets just

to keep her safe. I could tell by the way the staff treated me that we

are now labelled trouble makers as they were always on the defensive and

cold to us. Anyway tomorrow she is home and this nightmare finishes.

(Australia)