Meeting With School on IEP/504 Plan Stuff

March 2, 2004

Good evening CF parents!

Question for those of you with CF children in public schools.

My son Henry is a 6-year-old in Kindergarten in Fairfax County Public Schools in

VA. Last year, we were in a private school in TN, so I wasn't familiar with an

IEP and a 504 Plan.

I'm now learning about the two different policies and am meeting with the school

tomorrow.

Currently, Henry is in GREAT health and we have great support from the school

.... no prolonged absences yet due to health, etc., etc., but I want to be

prepared for the future if he did have to miss a lot of school.

As I have become more educated from this group, I thought that it was time to

talk with the school about an IEP and a 504 Plan and get certain procedures

documented IN THE EVENT that Henry did miss an excessive amount of school.

So, for example, do you have something like the following written in your plan

(in accordance with your particular school's policy):

" Homebound instruction will be provided for Henry Chastain by the Fairfax County

Public Schools in accordance with regulations if a physician anticipates Henry

Chastain being absent from school for 10 school days or more while under a

doctor's care. "

I will request a Handbook tomorrow from the school to look up the exact

regulation for Fairfax County Schools. BUT, I WANTED TO KNOW IF WE DOCUMENT

THIS TYPE OF ABOVE STATEMENT IN THE IEP IN CASE HENRY EVER NEEDS IT.

Is the IEP also where we document, for example, having extra snacks in class,

carrying enzymes in pocket, carrying water bottle to gym, having unlimited

access to the restrooms, etc., etc. or are these issues just maintained in the

School Nurse paperwork??????????????

Henry has these privileges right now, but I wasn't sure if they're supposed to

be written in his IEP in case we ever meet an unreasonable teacher, etc., etc.

I'll await your responses. Thanks a million!

Jen Chastain

Mom of Henry (6 with CF), (8), and (11)

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