Re: Any Answers???????????

[Guest guest]

I don't know whether this will ever end completely because she may

by now have enough damage to have chronic pancreatitis but any

doctor says she has to " deal " is a doctor you want to get as far

away from as possible.

If the stents work and then she gets sick afterwards that tells me

alot. There is a procedure where they " balloon " the duct open just

like they do a heart artery. I had great success with it for four

years and then had to have it done again in October. I have been

sick off and on since June and hospitalized 7 times. The last three

were after they ballooned that duct again but am now finally coming

out of it. Any time you have a procedure on the pancreas or ducts,

the risk for flaring up the pancreas are great. They had great

success with the ballooning. When the specialist in SC did the test

to check the pressures, that duct was closed up again which can

happen. So he did the ballooning technique on it again and it is

open.

Don't let them tell you there is nothing more they can do. Maybe the

doc she is going to cannot do anymore because he is not trained in

the other procedures. Alot of GI docs are not trained in even

putting in stents. The pancreas is another specialty away from

gastroenterology.

The information I was given at MUSC was that the stent itself has no

therapeutic value but they put them in after an ERCP to let the duct

drain so that the procedure does not cause a huge flare of the

pancreas which it sounds like your daughter is having. She is

getting a little relief from just having the duct open but the stent

comes out and she is sick again. She needs something that will give

her longer relief. Again, these docs just have not gone far enough

with her.

Everyone in this group has dealt with docs telling us we are drug

addicts, our enzymes are not up so we can't be hurting or have

pancreatitis, etc. That is nothing but a big lie by docs who don't

know what they are doing. A person who truly knows pancreatitis

will tell you that the enzymes don't have to even go up and yes we

hurt when the enzymes are not up. Likewise, sometimes the enzymes

are sky high and you don't hurt never knowing you have pancreatitis!

I hope this helps you some. Feel free to ask any other questions

you can think of.

Kaye......NC