Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Susiecue, So glad that you are doing well. Gosh you SOUND so much happier. I'm so glad to see that you are getting out. I think once we make up our minds that we need to enjoy life to the fullest and not let any disease control us, we have won the battle. I use to not go out because I had to use a cane or a wheelchair.. Now if that's what I need to get where I want to, than that's what I get. I will NOT let RP or any other disease control my happiness. While climbing or should I say dragging myself up the stairs last night, I thought about how wonderful a one level home would be... lOL I do love my house, but these stairs are getting OLD. LOL I guess I should consider it part of my exercise program.. Hopefully one day we will have a one level house. Or I can move downstairs to my computer room. LOL It's just so good to hear you sound so good. You are truly an inspiration to us all. Keep up the good work. Keep us updated as to how your new meds work too. You know I'm thinking of you all the time. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Susiecue, So thrilled to hear you are doing well. However, don't try any wheelies in that electric chair, sounds kind of risky. LOL I live in a one story home also and love it, I am able to do more around the house. Continue to do well and best wishes. Sandy -- Went to Rheumy Went to my rheumy today. He is really pleased with my progress. I've got little complaints but nothing major. I have arthritis in my fingers now thanks to the RP. I lost another 7 lbs. The bridge of my nose is swelling but he said not to worry as long as I don't have pain. I still have swelling & still hve to wear sandals with socks. What a lovely fashion statement. They don't want me in regular shoes because of the swelling & the chance of clots. At least I am mobile.I just can't say enough about moving to a one level home. I feel so independent now. Of course I have been overdoing hence the nose swelling but I take it easy. We worked Sat. & almost have the garage settled so we can put the cars in. Ted moves the boxes to me so I can sit & decided what to do. He gets the brunt on the work but at least we are getting there.I'm having pain from the arthritis but am so glad I"m doing well. I told him about my teeth hurting & that someone had posted about PCA I think, & he mentioned pneumocystic & didn't think that had anything to do with the teeth. Did I get it wrong? I think since I've resigned myself that there is a world out there to enjoy but I have to do a lot of it by wheelchair that I have begun to feel better about myself. It has opened a whole new world. I still get looks from a lot of people but I am becoming a whole person again. It may not last long if I go into a flare but I might as well enjoy it if I can. This disease really does change our lives in many ways, but we have to learn to adapt to whatever our circumstances are. I haven't quite learned the art of wheelies in the electric wheelchairs but I am practicing. The Doc will probably put me on Imuran next month & take me off the MTX because of elevated liver enzymes. They're not real awful but they are elevated. He didn't do it today because of the sinus infection. I also got a flu shot. The nurse didn't want to give it to me, but he said to have it if there was enough so I did. The hospitals latest thing is that they give each physician a small vial of the serum & when they run out they have to send people to the flu clinic they set up. Sure glad they had it. I was going to go to the store tohave it but they cost 15-20 dollars which is no big deal but why not let the insurance pick it up.Well, that's all for me. Sure hope that you gals that have been feeling so badly get on the road to recovery soon. It's easy for me to talk now because other than being tired I'm feeling fairly well now. Have had mood swings but nothing awful. Feel better everyone.Luv ya,Susiecue DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.