Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 We've had our son (Gregor, 8) on the SCD diet for a week now. He'd been on the ketogenic diet for a year, without noticeable improvements except for when we weaned Epilim/Depakote, and is SO enjoying all the new foods! Elaine Gottschall's delicious recipes are going down a treat. So far he has been more 'stimmy' than usual - his diagnosis is Landau Kleffner syndrome which has many similarities to autism, and the stimmy behaviour has only emerged in the last 6 months. He also seems pretty tired and is sleeping very well, which is great! Gregor lost all communication 2 years ago but is very alert and physically quick, so we have to be vigilant to keep him from cheating but we're used to that after keto. We thought the diet worth a try as his stomach is always bloated although he's otherwise quite thin. He doesn't have noticeable bowel problems otherwise, but was on huge amounts of antibiotics during chemo for cancer when he was 3. Speech loss started soon after. He's on Ethosuximide/Zarontin which is full of nasty stuff - saccharin, E211, sucrose... I know this is not helpful to the diet at all. We would love to have him drug free but would need to see an improved EEG before considering a wean. His seizures are subclinical during sleep. Has anyone else started the diet while on AED's? I'm trying to get an idea of how much they interfere - not enough to completely stop the diet from helping, I hope?! Any thoughts appreciated, UK Quote Link to comment Share on other sites More sharing options...
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