Re: More on Ototoxicity/JAYNE

[Guest guest]

There is an organisation in Oregon called VEDA; they are on the web;

if I get a link, I will send it to you and to the list--I know it's lost in poor

Herkimer here, somewhere! Love, n Rojas

More on Ototoxicity

Lyn's gentamicin levels were checked in the hospital before we left

to do three weeks of home iv therapy; we were given orders to have

them rechecked - ONCE, AFTER ONE WEEK. We trusted her doctor.

Since this diagnosis, he has not bothered to call with support,

concern, therapy information, nothing. I don't know how we are

supposed to continue seeing him in good faith. It seems every else

knew that levels should be constantly checked - I would like him to

explain his ignorance.

Thanks for the info on therapy; I am going to look for it.

There is certainly a lot of information at this site. I wish I had

taken the time to find it sooner - I would not have felt so alone

during the past 18 years!

Jayne - proud mother of Lyn, 18

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