Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Dear Sheree and Sharon, I am new to this group. I have been diagnosed with Rpolychondritis the past month and am trying to find out more information. I am sorry to hear of the problems you both are having with being diagnosed and treated . I seem to have a good team of doctors. They all comminicate well and don't hesitate to call one another. Of course they have not treated this disease before and I think they feel I am an interesting case. I did not know this also affected the roof of your mouth. So far I have just had it affveact my ear. But also I really have shortness of breath. Do either of you have that. How long have you had this, and you mentioned the pain, does it affect the joints or bones. Being on Pred. does take away any pain right now for me. Keep in touch and I hope both of you are better Quote Link to comment Share on other sites More sharing options...
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