Re: MELBOURNE, FL....just starting process....second opinion...lots of questions

[Guest guest]

Maybe you could just try going to another pediatrician. Maybe someone from FL

in this group can tell you the name of their pediatrician that did write a

prescription for a band? I don't think it matters if the specialist said yes or

no, as long as some doctor agrees with you.

Good luck and keep us posted. My son didn't get into his DOC band until 8

months, and he's made great progress, so you do still have time even if it takes

a while to sort this all out.

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> > Hi, I'm new to this board and still figuring a lot of things out so sorry if

I'm not posting correctly! My son is 5 months old. He had right-side plagio when

he was born as I noticed his right eye looked bigger than the other. I mentioned

it to his ped who said this was normal. At his two month appt, I mentioned the

flattening on the back right side of his head, the slightly bulging right

forehead, and again the ped said it would straighten out on his own. At his 4

month appt, I again mentioned it but also mentioned his ears were out of

alignment (right ear is more forward than the other). He AGAIN said it would

straighten out on his own. I got frustrated after returning home and called back

and made another appt and DEMANDED a referral to a pediatric neurosurgeon. So we

got him an appt and drove to ville (almost 3 hours away). The

neurosurgeon only recommended repositioning and said he does not prescribe a

helmet unless the child is immobile.

> What the neurosurgeon fails to realize is that we have already been doing

everything we can to keep him off the right side of his head, but it's like

fighting a losing battle. Especially since he flips over himself onto his back

at night and he's in daycare while my husband and I work (I've advised them to

keep him off his back but of course, I don't know for sure they do this). No

matter what we do, he WANTS to lay on the right side of his head. I'm getting so

frustrated cuz I feel like that every day that goes by is another day we could

have been treating his head with a helmet. I don't know what to do at this

point. Do I try again and request a second opinion with another neurosurgeon -

only to end up with another who is anti-helmet? Or do I bite the bullet and

drive to Miami for a DocBand? Will I end up paying 100% out of pocket because

I've already had a neurosurgeon say that he recommended repositioning? I wonder

if that trip to the neurosurgeon

> will hurt me now as far as trying to get insurance to cover a DocBand? I just

don't understand why ped and the neurosurgeon look at my son's head and say,

" this will correct on his own. " He's had it since he was born and now he's 5

months and still nothing is getting better, only worse! It's really noticeable

when I look down at the top his head as his ears are so out of whack. I'm so

frustrated I could just cry. I guess if I have to charge $3800 on a credit card

it will be worth it. Anyone have any experience in getting a DocBand covered by

insurance after a neurosurgeon recommended repositioning?

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