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Re: CFF Webcast

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Angie,

I had the same thing happen to me, at first. The research one was on earlier. I

got set about 6:30 and there it was. I began to listen and realized I had the

wrong thing so I started over. I don't know if they had it set up wrong or if I

did something wrong. But, both things were on tonight.

Jill

--- Original Message -----

From: angiepartin

To: cfparents

Sent: Monday, January 12, 2004 8:05 PM

Subject: CFF Webcast

Well, I was able to get onto the webcast but it wasn't anything about

germs like the cff website and emails said. It was mostly about new

research and treatment, etc. And when they went to the question and

answer period it went silent. I'm really disappointed. I was

expecting much more.

Angie P. (Ma to JC, almost 4, wcf)

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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I only caught half of the 9pm webcast, but it talked about a new

national infection control policy. It was very informative.

They are putting out a new brochure with all of the new

information. I am going to get several copies for family members.

Sara

> Well, I was able to get onto the webcast but it wasn't anything

about

> germs like the cff website and emails said. It was mostly about

new

> research and treatment, etc. And when they went to the question

and

> answer period it went silent. I'm really disappointed. I was

> expecting much more.

>

> Angie P. (Ma to JC, almost 4, wcf)

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I tried to get on the 7pm and the 9pm session but never got onto

either one. :>(

Gale

> > Well, I was able to get onto the webcast but it wasn't anything

> about

> > germs like the cff website and emails said. It was mostly about

> new

> > research and treatment, etc. And when they went to the question

> and

> > answer period it went silent. I'm really disappointed. I was

> > expecting much more.

> >

> > Angie P. (Ma to JC, almost 4, wcf)

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