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Re: Back from Mayo-sdale

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Suzi,

I am glad your experience was a good one there. And I think your

reasoning of your family and their wanting you to go there and you

actually having done so, will allow them to move on and take the

next step in supporting you how you want and need them to. Sort of a

mental step by step process for them dealing with your illness.

If the doc from Mayo later on wants to do an internal procedure,

then perhaps he can knock it out with the powers who be in your

insurance company and will be successful, especially if it can lead

to a vast improvement.

It sounds as though this definitely was a good decision to make in

going there for everyone, especially you.

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Suzi,

I'm glad that your experience at the Arizona Mayo Clinic was so successful.

While we know there isn't a miracle " cure " for CP, having your disease

validated and reviewed by the " pros " must have made you feel really good. I

understand what you were saying about having to prove this to your

family....sometimes it's necessary to go to the extreme just to satisfy

relatives

opinions. At least now you won't have anyone doubting your illness, since

you've gotten the official diagnosis from the best doctors in the country.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina State Rep.

SE Regional Rep., PAI

http://pancassociation.org/anthology.htm#Heidi

Note: All comments or advice are based on personal experience or opinion,

and should not be substituted for consultation with a medical professional.

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Suzi,

glad your experience at Mayo in sdale was better than mine this past summer

at Mayo in Rochester. Like you, I felt a lot of pressure to go to Mayo with

some people (not really my doctors or my family) thinking I'd go to Mayo, they'd

wave a magic wand, and I'd be all 'fixed'! So, I went, didn't get 'fixed',

found that my local doctors are (in my opinion) a million times better than the

'experts' at Mayo.

I debated greatly over whether or not to go but felt if I didn't that maybe

people would think I just didn't want to get better. So, I've been there, done

that, and will NEVER do it again!

take care,

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