TV Show

[Guest guest]

I was wondering if anyone else watched the new show on CBS called Joan of

Acardia? Last night they continued on with the young character that had CF.

When they showed the first show, I was angered at how they only dwelled on death

on the show (The pity factor) and I emailed a complaint that they need to

explain the disease better than having a 7 year old boy say he has CF and he is

going to die. Well in the second episode he died. Again, the pity factor and

God told Joan that the character was in a better place.

With the perfect opportunity to explain, it is easier to take the high road when

it is not the " IN " disease. (Not putting down, AIDS, Cancer, but they get more

explained in TV shows)

Again, I have emailed a complaint and like the last time I expect nothing.

Hope everyone is well. is right now.

Traci mom to 3 great girls One w/cf

[Guest guest]

Traci: Unfortunately, most programs that include a person (usually a

young child) with CF get their information from the Cystic Fibrosis

Foundation, which stresses that CF is a killer of children. It enhances

the CFF's methodology to motivate via pity donations to their

organization. I personally find it repugnant, as it is not only

demeaning to those of us who have survived into adulthood (the

overwhelming majority of those with the disease) but it gives the

parents of young children a pessimistic outlook for their child. I have

challenged the CFF many times about this, only to be ignored. I believe

that more parents should express their feelings about TV programs that

offer little hope for those with CF. Maybe eventually the producers

will catch on. Hal (still a child at heart but haven't needed my Teddy

Bear in the almost 48 years of marriage:-))

TV Show

I was wondering if anyone else watched the new show on CBS called Joan

of Acardia? Last night they continued on with the young character that

had CF. When they showed the first show, I was angered at how they only

dwelled on death on the show (The pity factor) and I emailed a complaint

that they need to explain the disease better than having a 7 year old

boy say he has CF and he is going to die. Well in the second episode he

died. Again, the pity factor and God told Joan that the character was

in a better place.

With the perfect opportunity to explain, it is easier to take the high

road when it is not the " IN " disease. (Not putting down, AIDS, Cancer,

but they get more explained in TV shows)

Again, I have emailed a complaint and like the last time I expect

nothing.

Hope everyone is well. is right now.

Traci mom to 3 great girls One w/cf

[Guest guest]

I did see the show last night and the first episode as well. I was

really dissappointed last night especially because they didn't even

mention the fact that Rocky had CF, just that he died from " a

disease " and that he was obsessed with death. Wow that's explicit

(sarcasm). The first episode just said that he had CF, not anything

about what it was. And yet we wonder why there's such a need to raise

awareness.

Take care!

Michele B

[Guest guest]

I am so glad this is a topic. My girls are in love with this show! The

first episode I was unaware that the character Rocky had CF until the mother

opened up the draw with all the meds. , 8yowocf, turned to me and said

hey mom he has CF after seeing that scene. At that point I turned the

channel and went upstairs to watch the rest fearing the worst cause for

dramamatic purposes. I was disappointed that the producers did not take

more opportunity to educate at that point. Maureen, 13yowcf was not home to

see that one. So I just left the issue alone. Normally we tape it when they

are not home but I had forgotten that night.

Last night they watched it not knowing the full storyline. Surprisingly,

the whole idea of Rocky dying did not disturb them. They looked at Rocky

as what led Joan to help her friend Adam with his mothers death. (pretty

deep for two young girls)

I love this show and I am disappointed with the fact that they made CF such

a downer. But I am more appalled with MTV and the girl with CF on the Real

World. This is a reality show with a " CHILD " that is intentionally

committing suicide (in my eyes) on national TV. CF is a disease that no one

cares about now. What will peoples attitudes be like toward CF when the see

a girl that SMOKE AND " PARTIES " because she just wants to LIVE on TV? This

kid needs serious help and not just in the medical department.

At least Joan of Arcadia was one episode, the Real World is week after week.

Does anyone know what we, as parents of children with CF, can do to voice

our disgust? Maybe a letter writing campaign followed with letters to our

local paper. I HATE these Reality shows because they are anything but real!

Meg

Mom of 3

2wcf

Re: TV Show

> I did see the show last night and the first episode as well. I was

> really dissappointed last night especially because they didn't even

> mention the fact that Rocky had CF, just that he died from " a

> disease " and that he was obsessed with death. Wow that's explicit

> (sarcasm). The first episode just said that he had CF, not anything

> about what it was. And yet we wonder why there's such a need to raise

> awareness.

>

> Take care!

> Michele B

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>