Trigeminal neuralgia -Sharon

[Guest guest]

Hi Sharon,

I'm sorry to hear you have TN too. Yes, I do have burning and pain on

the left side of my face when the nerve is flared. Direct sunlight

will make it worse during these times. I even had my car windows

tinted to keep the sun off my face when I drive.

I wish I could tell you the docs have done something for me. Pain meds

are the only thing offered for the TN, and they all just shake their

heads about the feet burning.

How long have you had a hard time hearing ? Is the TN also on the left

side?

My hearing went all of a sudden - in the amount of time it takes to

stand up from sitting.

I'm glad to know your neuroligist thinks the TN and RP may be related.

Until just recently I only had odd pieces of a puzzle that no one

could make a picture of - now at least it has a name.

Do temperature changes affect the burning in your hands and feet - or

have you noticed anything that triggers it?

Thanks for writing - and sure wish I could have said something

helpful.

p.s. Is your neurologist knowledgeable about RP?