Back to Chrissy!

[Guest guest]

Hi Chrissy,

Thanks again! and for asking about me. I was a frequent poster

when I first learned I had PD and I was asking all sorts of

questions about why the docs were doing what they did and was

it normal to feel " this way " etc. But I stopped all therapy last

December when my GI decided that I did not have a pancreas

problem after all, that I somehow mislead him into believing that

I did and that " are you happy because I probably caused the very

problem that you wanted me to treat? " lecture. So he concluded

that my problem was " just IBS " and he would be happy to

counsel me on learning to live with it. So I dropped him like a hot

potato after the three ERCPs and two stents. Since then I have

been getting pain management through a pain clinic. She has

been wonderful. I am not hopeful that things will get any better as

I was blocked for at least three years and I suspect if I get an

ERCP in the next five years that gross changes will be evident. I

basically have the day to day problems that everyone

describes...the pain, nausea (big time), lack of energy, lack of

motivation to do anything and the wish that it would all end one

way or another. However, I also realize that I am not that bad

when compared to others on this board so I use that on my good

days to cheer me up and on my bad days.....to depress me even

further to realize that they are me in a few years...........The most

depressing thing is to not have any doctors, other than my pain

doc, who are willing to help me deal with this. It is hard to make

all the decisions on your own and to have to beg for medical care

or diagnostic tests. That is why I am trying to get as educated

about this as possible so I can pick and choose my battles...to

let the little things slide but to put up a big stink with the big

things. Luckily, I haven't had to deal with any really big things in

almost a year now!

So, that is my status right now.......I hurt if I do nothing, I hurt if I do

something so it is better to do something than nothing I guess.

Laurie