Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hello, I'm new to the group I've been reading a lot of the messages, I guess waiting to feel a little more comfortable before I started to post myself. To tell you a little about myself I'm married, my husband and I have two wonderful girls. My five year old has cf, her name is Mazie, she was diagnosed just after she was two, her only real sign that she had was a rectal prolapse. Our pedatrician thought it was a shot in the dark, she actually said, let's take worse case sinario let's test her for cf then we have the worst out of the way and we can narrow down what else it could be. When I was extremly consered that they were testing of cf she said, don't worry I truely don't think this is what it is, she shows no other symptoms this is just a starting point to finding her problem. So without much worry I went the next morning for the sweat chloride test, they called the next morning and wanted us to come in at closing of office hours for a " talk " needless to say we knew the news could not be good.That's when we were hit square between our eyes, no history anywhere that we could find, and to top it off at this time I was 4 months pregant for Alivia my (will be on Sat.) three year old baby! With a lot of prayers Alivia is only a carrier. I guess I'm recently new to talking to others outside her care team about her illness, so forgive me when I sound uninformed, I'm doing much better now, I'm not just being the mommy robot that makes sure all meds. and treatments are done on schedule, I'm much more ready to take this disease on and give it everything in my power to help others and fight this ugly thing and find a cure!!!! So finally, my question, does anyone see a difference in people with cf according to where you live, their climate and enviroment. Does it make a noticable difference, I live in Ohio, my girls and I spent a lot of time recently in Arizona. I visited the cf clinic in Phoenix and my curiosity is now getting the best of me. Is my daughter, in other people's opinion, better off in one climate verses another? Or am I off base that with the right care, meds, attention, treatments, ect. cf peole can thrive anywhere?! Just always wondering if I'm doing everything in my power to slow progession as much as we can. Quote Link to comment Share on other sites More sharing options...
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