Re: Not totally cf related/just talkingPATTI

January 20, 2004

Patty - you are not alone!!! Being strong is talking about it. We all have

those days and it gets tiring to " pick up yourself and know tom. is another

day " ...the chronicity is what runs us down. You are strong. Cause being

strong is being able to articulate how you feel and why. I agree that the

diagnosis of CF has had a domino effect on my life and all

relationships.......than I

try - God, its stretching it sometimes - to find the positve - the wonderful

people, strangers who have shown me so much kindness and support when friends

have walked away cause they " can't deal with it " . You know what, screw them,

we didn't ask for this or want this but this is life...BUCK UP...........they

can't deal with it.......too bad for them...then they tell me " your so strong "

--- hello, I got this strong cause I HAD NOT CHOICE - I had to DEAL WITH

IT........

When my mother was dying we were all mad cause her younger brother, in his

early 40's - she was in her early 50's never came to visit. My mother said

" don't be angry with him - he can't bear to see me like this " ...to me that was

amazing. To be so compassionate and understanding....I look to memories of her

to help me from judging . She was right that he loved her and it broke his

heart to see her and it was probably better because she would have been sadder

see that " look " in his eyes...In the end he came around and was with her the

night before she died singing Irish songs with her...

Gosh, I ramble.............hang in there........you will be fine......you are

NORMAL.............

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

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