Re: 504/IEP Info-THANK YOU!

[Guest guest]

Thank you, thank you, thank you to everyone in the support group that has

provided me with lots, and lots, and lots of good information to use in little

Henry's 504 Health Plan at school.

Your advice was very, very helpful and educational.

Have a GREAT week!

Chastain and family

>

>

> Date: 2004/03/07 Sun AM 05:04:40 EST

> To: cfparents

> Subject: Re: Meeting With School on IEP/504 Plan Stuff

>

> Jen,

> Although I am new here, this is something I know something about! My

> son was not diagnosed until his Junior year in high school. He had a

> 504, but it was very general. The school district would not allow

> him to carry his enzymes, so every time he needed them, he had to go

> to the nurse. What a pain! Here is my advice. Since turned 18,

> they have been trying to take away his medical assistance card.

> Yikes! One of the reasons that they used to decide that he is not

> disabled is that he had no activity restrictions in gym class. I had

> spoken to the teacher and he understood, so I didn't find it

> necessary. Big mistake! Make sure that all his restrictions are

> listed, such as need for frequent rest periods in gym, keeping him

> away from dust and fumes, moving his seat if someone sitting next to

> him is sick, frequent bathroom breaks as needed,etc. Although it may

> not be necessary because the school is cooperative, as in my case, it

> may save you headaches in the future. Wish I had known sooner! Hope

> this helps!

> Jill

>

>

>

> > Good evening CF parents!

> >

> > Question for those of you with CF children in public schools.

> >

> > My son Henry is a 6-year-old in Kindergarten in Fairfax County

> Public Schools in VA. Last year, we were in a private school in TN,

> so I wasn't familiar with an IEP and a 504 Plan.

> >

> > I'm now learning about the two different policies and am meeting

> with the school tomorrow.

> >

> > Currently, Henry is in GREAT health and we have great support from

> the school ... no prolonged absences yet due to health, etc., etc.,

> but I want to be prepared for the future if he did have to miss a lot

> of school.

> >

> > As I have become more educated from this group, I thought that it

> was time to talk with the school about an IEP and a 504 Plan and get

> certain procedures documented IN THE EVENT that Henry did miss an

> excessive amount of school.

> >

> > So, for example, do you have something like the following written

> in your plan (in accordance with your particular school's policy):

> >

> > " Homebound instruction will be provided for Henry Chastain by the

> Fairfax County Public Schools in accordance with regulations if a

> physician anticipates Henry Chastain being absent from school for 10

> school days or more while under a doctor's care. "

> >

> > I will request a Handbook tomorrow from the school to look up the

> exact regulation for Fairfax County Schools. BUT, I WANTED TO KNOW

> IF WE DOCUMENT THIS TYPE OF ABOVE STATEMENT IN THE IEP IN CASE HENRY

> EVER NEEDS IT.

> >

> > Is the IEP also where we document, for example, having extra snacks

> in class, carrying enzymes in pocket, carrying water bottle to gym,

> having unlimited access to the restrooms, etc., etc. or are these

> issues just maintained in the School Nurse paperwork??????????????

> >

> > Henry has these privileges right now, but I wasn't sure if they're

> supposed to be written in his IEP in case we ever meet an

> unreasonable teacher, etc., etc.

> >

> > I'll await your responses. Thanks a million!

> >

> > Jen Chastain

> > Mom of Henry (6 with CF), (8), and (11)

>

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

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>

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