Re: Post from a new member.

[Guest guest]

My Name is and I have found your group for myself. On December 30, 2002, I was Diagnosed with RP. Happy news since now I have a name for what ails me. I have had all sorts of problems wrong with me. Back in June of 2001, I went into the hospital for minor surgery and wake up three weeks with tubes and IV's not understanding what happened. After making what my doctors thought was impossible I came home to ten months of hurling and dressing changes. Last December 2001, I started having trouble breathing and shortness of breath. I was also having many migraines. I have went to so many doctors trying to find the answers to problems. After many CT and MRI's, dose after dose of antibiotics They draw the conclusion that I had Relapsing Polychrondritis. I am now trying to find all the information I can about my future with this disease and how the quality of life I will have. The new treatments and what I can do to keep myself safe and healthy.

So Hello and Happy to meet you

Love and Prays