KIM

[Guest guest]

Kim,

Eilish has G551d so where do you get genistein and how is it used? What

is it meant to do? Eilish really doesn't have any bowel problems and is

on the lower end of Creon dosage so it's the lung infection part I am

very interested in.

Re: info.needed on supplement KIM

,

Genistein is an isoflavone (found in soy) that is being studied for

it's ability to induce chloride secretion in people with the G551D

mutation.

Genistein doesn't work for people who are homozygous for the F508

mutation, but ongoing studies are looking at its effect on R347P and

R117H mutations.

For people who have the Delta F508 mutation, researchers are studying

the flavonoid quercitin, which is found abundantly in plants

(vegetables, fruits, herbs). This is why the Crataegus yahoo group

began.

Crataegus (also known as hawthorn) is abundant in quercitin. Some

people using it after Gould contacted Blank, a German

mother, who researched it based on the ongoing work of researchers

Beatte Illek and Pamela Zeitlin. was able to turn around the

health of her daughter's CF by using crataegus. One of the first and

immediate benefits you see is normalization of bowel movements, which

helps the body come into homeostasis.

Dawn, if you want to know more about genistein, search the Crataegus

archives. I know Roe was using it for her son instead of crataegus

since he carries that mutation.

Kim

> I have read that Genestein (sp?) helps with the G551d gene,. Has

anyone

> ever used it? Is it in medicine or tablet. Does anyone know what

it

> does and how you buy it i.e. pharmacy etc.

>

> Thanks

>

> (Australia)

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