sphincter of Oddi Dysfunction leading to chronic pancreatitis

[Guest guest]

Hi Zoie,

Welcome to our support group. While I personally haven't had any problems

with my ducts and don't have SOD, there are plenty of other's here who do,

so I'm sure you'll get some good answers to your questions about that.

I'm a bit curious to know why the doctors decided to wait two months before

starting you on enzymes and a low fat diet. The diet helps so much, and the

enzymes, too, that I'd think they would have started that treatment right at the

beginning. You could always start adapting your eating habits to a low fat diet

on your own....certainly couldn't hurt anyone and it is very healthy. Do you

have some underlying problem that would explain why they think you should

wait?

Which Mayo clinic were you at? I'm going down to the clinic in Florida later

this month for a review with Dr. Lange.

Even when I was 30 pounds underweight, I still ate a low fat diet because it

did so much to help me not to have pain when eating. Oh well, if you should

decide to go ahead with low fat on your own, we have some good tips about

cooking and food choices in our " Files " section. If you go to the files you'll

see a section called " Nutrition " . Click on that and then there's a folder

entitled

" Diet Tips " .

There's some great articles in our files, and a very informative pancreatitis

library at: www.top5plus5.com

Welcome again, and feel free to jump in and ask any questions or comment

on other posts. Let us know how we can help you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep., PAI

Note: All comments or advice are based on personal experience or opinion

only, and should not be substituted for consultation with a medical

professional.

[Guest guest]

Zoie,

Hi, I too suffer from Cp due to having my gallbladder removed, and

then having SOD dysfunction that went undiagnosed for 5 years. When

I did finally get a (half) diagnosis, they only tested the bile duct

and found high pressure so they cut the sphincter. Then I continued

to have painful attacks and then 1 year later found that I also have

high pressure in the pancreatic duct too. I had a sphincterotomy on

that duct too, but unfortunately, I still have almost daily pain. I

truly believe that because it took the docs around hear too long to

diagnose me with the SOD that it caused further damage to the

pancreas. I am currently treated with pain meds and so I don't

suffer too much. Still have uncomfortable times with taking the

pain medication, but it definitely keeps me out of the ER. Hope

some of this helps.

Take care

Kris in TN