CF/MISC-with GrandmomBEV

[Guest guest]

HOWDEeeeeeeeeeee YOU'AL

It has been a while since I sent my " group " post. I of course had a

VERY busy holiday . I did post about all my travels & everything except

my checkbook being stolen was super. (it has been return to me from the

police.All is well -Thank heaven!!

AGNES.. The leg is broken.egads. what else. I am happy your getting a

wee bit better BUT....DO NOT GO OUT. Living in CN right now is not

conducive to walking outside , The black ice got you there soooo, just

enjoy the computer,stay inside while you can. Your in my quick recovery

prayers with many on these lists..

NORMAN KP.. just had to tell you thank you for your wonderful site. It

has it all . a link to everything that even smells like CF.(hehe) We all

appreciate you & your efforts for our education. I will put that site

here for all to visit no, its not a " list "

folks.www3.nbnet.nb.ca/normap/CF.htm There are-were 2,094 links

GOSH!! & WOW !! Folks will be hitting it all day & well they should-it

directs you to whatever you want to learn about.

disease.equipment.infection.surgery.stats..laws..etc.. just follow the

directions on home page. THANKS.............

KATY. it is always nice to see the follow-ups on PIPER who is such a

great wee one .

your doing a great job, mommy.Thanks for getting the ED day info .Very

nice of you.

KRISTINE.. You sure have jumped right in & have so much info . It is

wonderful how you share so quickly for others. We all seem to learn so

much quicker form others who have been there & done that type of info. I

guess we feel so much more secure with it . Sooooooooo, from us all

THANK YOU!!

VALERIE.. hey gal, your doing fine. we all have to learn sometime/where.

So,now is your time & you sure are doing a great job. Thanks for being

on the list too. Everyone is so helpful..

KALEN.. Oh MY GOSH.What an experience you had going to Doctor. It sure

did teach us all the " mom was right " always have on clean undies when

you leave the house.BUT.. We need to add & a small bag with chg. of

clothes & toiletries too hehe. What a story., many smiles, I liked, " If

you leave you'll lose it " Who would have thougth the nurse meant a bed

in the hospital -hehe Thanks for sharing & stay well-We will remember

what you said " don't leave home without it " hehehe

ROXXE.. Thanks for the good news post. We always welcome them....Bring

'em on.........They help make our day ever time. a positive post really

is super to read.

ANDREA. Your post and your stories are a delight. Such knowledge

of mommy with such a young (5)gal with CF. Your a born teacher.Thanks

for jumping in to help us all. I do hope all is well in your home with

all this winter weather about.

KRISTY D. It is pleasant to see such an interesting & interested young

adult with CF, help with folks on the list too.I sure hope the visit

with the endocrinologist will put some light on better care for you.

keep us posted, as you do , we all learn from each others appointments

too. Bless you!

TAMMY M.. Welcome to the lists. they are all really great. each one has

folks that care so much for one another & sure do have plenty of

information for us all on just about everything. Several folks from PA

too.. Again, Welcome aboard.

JILL M. WELCOME. how great an aunt you are to be trying to gather info

for your niece.

I believe you said she was 10 years old. there are several also on here

with that age child & I am sure you will hear from them . I will look

forward to your posts,,

TRICIA> HEY GAl " NEW LUNGS " -ENGAGED " ALL THAT OVER NEW YEAR.I would

say your doing about the greatest new year stuff I have

heard......Congrats on the engagement . how romantic-New Years eve

proposal !! AND How wonderful .new lungs-new breathing................I

am very happy for you as we ALL are..Keep us up on all your plans for

every thing........

BRENDA M. it is so good to get posts from the folks of so long on the

list. Glad for all the updates, I was very sorry to hear about your loss

of doggie, You know how much we all care & are too , saddened .. Give

Angie a hug , are you coming to CFRI this year . Ask about scholarship

early , I bet is eligible for the retreat days before conference.

go on line & get info exactly.I would love to see you all again this

year.

GEORGE & BRITTA. Ok. Now hear this you too- " I THINK YOU ARE BOTH FULL OF

IT "

KNOWLEDGE , THAT IS -HEHEHEHE. fooled ya , didn't I , Thank you so much

for the help & info on the list. I haven't been on it very long , BUT ,

GOLLLEEE. you all are super knowledgeable & it is appreciated..

KIM P.. HEY, YOU GAL. You are full of it too.So don't go laughing at

them. hehe I am very happy you have found someone who you can really

enjoy. When will you be moving, or ARE You? is doing well & so is

- no strings now. . If your sister-in law doesn't get her head on

straight , she is going to be the black sheep of her own family. Gosh is

she ever stupid ! ! sorry, BUT, how could she even go there??? O.K. Just

letting off steam for you (hehe.) Catch me up on you soon. Love ya-you

know that. If you move to FL , you know you have a

job......................

CAT W... I am sorry your having to go thru all the hoops & whistles ,

but to share the info on " desensitization " was very helpful to those who

might be facing it. No pain, aprox 5 hours, Not bad. I really like the

NO PAIN part . Maybe now , if folks are told that, they wont be so

scared or worried. All the info gathered on these lists are so helpful .

Thanks again for all you share.

LORI MORRIS-HUGHES.yes, it is long you all,-- but I wanted her to see

it. We are praying for you gal. I know you want / need that TX & all

the goodies that go with it. I am sure you will get listed VERY soon.

N.C. is a lovely state..I like both of your choices & it appears all

will work out for you . Before , during & after., we love ya!!-all of

us.Do let us know by the minute...:)

MELANIE B. I am glad so many folks found the " right " Inositol & also the

right dosage, etc with it all . Lois did get info as did all others .

When we saw that, she just said she was glad .if you ever have any

questions, you can call her. She doesn't mind at all. enjoy & thanks to

you too for info passing:)

STACIE K> How nice that the vest folks took care of all the " STUFF " that

goes with getting one. I know it must be wonderful with your 5 year old

Mazie. & especially for you folks NOT having to do all that . She can

read, watch movies/TVs etc . Sure changes the day & all that treatment

time. Thanks for letting others know how very easy it was. these things

get scary that at first your told this huge price tag...BUT all is well

with them. they do the begging (filing) for us all. My granddaughter has

hers too (she is 20 yrs. old & at College .no one could have done the

treatments for her there easily, so we are VERY happy with it...

hi to all those I haven't mentioned. I have been writing indivuals

allot more than I used to, but I love you all -all the time. Your in my

prayers each day...............

LOVE & HUGS,

grandmomBEV

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remember if I can be of help to and if you ever need /want to talk to

anyone.

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