Re: new here... please help.

[Guest guest]

Tracey,

First, let me say that I would really like to talk to you off list about the

Valtrex as we will be starting it next week. Please email me privately, so I

can get more details on your personal experience. Secondly, I think that you're

right to do SCD. Valtrex can cause a lot of flare up with yeast and harmful

microbes in the gut, and SCD can combat that for your son. I just finished

watching Stan Kurtz's presentation from this summer's DAN conference on his

newest research which involves Valtrex. He absolutely feels that SCD should go

along with that treatment, but mentioned that sometimes even SCD isn't enough to

keep away the harmful bacteria and yeast when doing antiviral medications. So,

start with SCD, but you may have to add in some natural antifungals like

grapefruit seed extract, oil of oregano, and others. If that doesn't work, you

can get a prescription antifungal as a last resort. I only mention that because

I would hate for you to give up on SCD thinking that it wasn't working. It will

definitely help your child's gut to heal...which in turn helps his brain to

heal.

So, about the hunger strike...I'd encourage you to read through some of the

pecan bread files. Several families have had children go on strike, and I

believe the record is nine days thus far. As long as your child is consuming

fluids, then wait it out. He is counting on you caving in because he is

addicted to these foods. Just really, really make sure that everything that he

eats and drinks is SCD legal. Also, check any supplements and medications to

get as many of them in a legal form as possible. Valtrex can't be compounded

into SCD legal form, but many meds can. I'm looking forward to talking with you

about the Valtrex.

Meleah SCD 05/06

iel 3.5yrs. ASD, Ethan 5yrs., Mark 19mths., both NT

new here... please help.

hello all. so, here's the story...

my son, nick (5yrs old) was diagnosed with moderate autism a little

over 2 years ago. since then, we've been traveling down the road of

biomedical interventions. the 1st one we did was houston's enzyme

trio as an alternative to the GFCF or SCD. we saw remarkable

results. he began to speak again shortly after beginning them.

without remembering the exact order of the supplements i'm about to

list, he started brainchild's minerals, td-dmps (not now), yeast

treatments, probiotics, LDN, and now valtrex. he has made enormous

gains with the valtrex.

i am feeling good about all of nick's progress. it's been amazing.

but something's just not right. while he lost a lot of the purple

that was under his eyes, he still has rings. this leads me to

believe it could be a food allergy. so,i decided to give the SCD a

try again (we tried it 2 years ago with no luck. nick starved

himself for 2 days. wouldn't eat a thing so i gave in). i made him

teh midas waffles tonight since nick has an extremely limited diet

(shocker). he only eats soft pretzels, waffles, oj, propel, milk,

and sometimes french fries. horrific, i know. so, i had hoped to

ween him into the diet. i made the waffles but put his usual syrup

on them. i figured i would trasition to honey on them once i was

able to get him to eat the waffles with the syrup first. he put the

first piece in his mouth, chewed a few times, and gagged. he

finally, through tears, chocked it down but absolutely refused to

eat anymore. he became angry and upset.

ugh. what dod i do? PLEASE TELL ME. I DON'T CARE IF YOU THINK IT

WILL UPSET ME. WHAT DO I DO?

i'm worried that he needs this diet. but he's already so thin. i

can't bear starving him again if he's not even going to eat at the

end. what should i do???? please, please help.

thank you in advance,

tracey

[Guest guest]

Welcome to the Group Tracey,

<< ...ween him into the diet. i made the waffles but put his usual

syrup > on them. i figured i would trasition to honey on them once i

was > able to get him to eat the waffles with the syrup first. he

put the > first piece in his mouth, chewed a few times, and gagged.

he > finally, through tears, chocked it down but absolutely refused

to > eat anymore. he became angry and upset.

>

> ugh. what dod i do? PLEASE TELL ME. I DON'T CARE IF YOU THINK IT

> WILL UPSET ME. WHAT DO I DO? >>

Sometimes what might be best is not to try at first to imitate the

foods a child normally eats but do a complete " 180° " and give him

other legal foods that he normally wouldn't eat. The texture and

flavour of the SCD baked goods is very different even if you get a

very fine grind of nut flour. Many children who eat only a few

starchy items PreSCD often won't touch the baked goods for a while.

Once they start starving out the harmful microbes and start

to " forget " about the texture of the illegals like waffles etc. they

may become more receptive to SCD versions of their old favorite

foods. Some kids don't just sticking to simpler fare of meats ,

cooked fruits and veggies etc..

One thing that will help the texture of the baked goods is starting

with nut butters over nut flours. Nut flours will not work in every

recipe but are okay in most. The peanut butter cake recipe is a big

hit for many. Almost any nut butter can be substitued in this recipe

and peanut butter doesn't seem to be a good " nut " butter to start

with (peanuts aren't really nuts anyway). If you do try an almond

butter for baked goods try to either find a blanched (blonde) almond

butter that is made without the tough (difficult to digest) almond

skins. Almond butter made with skins has lots of little dark specs

throughout it.

These llinks may also help you Here are some tips for getting started

on the diet:

http://pecanbread.com/foodprep.html#transition

http://pecanbread.com/foodprep.html#menu

Sheila, SCD Feb. 2001, UC 23 yrs

mom of emily and