Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Thanks! This makes sense. I've already decided 's preference to turn right and physical imbalances that contributed to the plagio probably started in utero because he was oversized. He was 9lbs, 2ozs and I'm only 110lbs, if that. 's 7lbs,3ozs older brother was born with what most likely was tort and he still has very mild plagio. At least the bent ear tip was probably congenital and not my fault. I'm curious whether uterine constriction could also contribute to an undescended testicle. had surgery because his testicle never descended on its own. Does anyone know? Have other full term plagio babies also had an undescended testicle? Thanks again, Kathy, mom to almost 23 months and 5.5 years edpsp wrote: Actually they are related, but you still shouldn't feel guilty. Tort, plagio, and many ear deformities all can come from uterine constriction. Unless you want to beat yourself up about your uterus and pelvis not expanding enough, don't feel guilty. Besides feeling guilty won't help and may make things worse for all of you. The problem is that OB/gyns don't watch for this. As long as the kid's not in distress and is still growing they don't get concerned about positioning. They don't live with the consequences. Eli > > > > > > > > > > > Kathy, > > > > Given the recent measurements that you've posted and the length of time in the band, this makes total sense. If his ears are still sticking out, then I'm guessing that it is not related to the plagio. > > > > And, you've been here nearly as long as I have and I don't think that we've seen any other posts about this loop ear. It also sounds like it is more related to the upper part of the ear than the skull. > > > > So, no need to feel guilty. The two are probably not related. > > > > For a while, I felt bad at how 's ears looked, but over time, and I believe with the chiro that she has had, her ears now look totally typical to me. They stick out only the very slightest bit, but less than some kids who have completed normal heads. So, I've let the ears go as well. > > > > You should feel really good about 's progress now that his numbers are in the normal range for both level 3 and level 5 (I meant to reply to your post, but it got lost in my other emails). You have done so much to help his head and I'm guessing that you will have helped so many other things for him by doing all of the alternative treatments that you have. We are so grateful that we tried chiro for and the most obvious side effect was the cure of her reflux. We also saw visual improvement in her head as well, even if we don't have numbers to back that up. Neither of my kids have had any ear infections since they started getting adjusted and we all have been healthier this season than any season since the first child was born. > > > > I know the desire to seek for perfection - or in 's case, I just wanted what others would call "normal" by the measurements. (focusing too much on the numbers is an unfortunate side effect of my job). But, it has been a process for me to learn to start accepting her head shape. I don't believe that her head stands out these days (even though her numbers say that she is very much not normal) and I'm guessing that 's probably doesn't either, although I have never seen pictures. It just seems that with his numbers, it is hard to imagine that it could not look normal. > > > > For a while, I considered more treatments for her and I'm still not 100 percent sure, but I'm beginning to feel that enough is enough and it is time to spend my time, finances, and efforts on other things. My kids are starting to grow up and I'd love to put that money towards a gymnastics day camp for both kids this summer rather than more treatments that may or may not work due to her rising age. And, as gets older, her personality stands out more and I can start focusing more on that than on her head. is a little younger than and I was still struggling when she was approaching 2, but I'm hoping that as his personality and talents begin to shine, you can relax about what is probably a pretty typical head shape. With his numbers, I sincerely doubt that he will have any medical effects. It will probably never be noticeable to anyone but you. > > > > But that's the way it works - we spend so much time analyzing the head that it is hard not to see those little things that are not perfect. Or, it least this is the way it works for some of us (me included). And for those of us that banded late, there is extra guilt for not doing anything earlier. I believe that there is a kind of understanding between us mom's of older banded babies (no offense to moms of younger babies intended here). There is guilt for the head being flat, but then add on the guilt for not doing anything until late, and this is really hard to let go of. I speak from experience. It becomes more difficult as the toddlers approach their helmet graduation and we had wanted more improvement than we got. Yes, we had been cautioned that we wouldn't get all the way there, but we had secretly hoped that our toddlers could be an exception or at least would have gone further than they did. At least that was the way it was for me. > > > > In 's case, you did get further than some of us since his numbers are in the normal range. Think about it - do you really think that his numbers could have been better if banded at 6 months? It's possible, but many babies graduate with those numbers. It's hard to get a perfect 0 mm. I really think that you can let go of your guilt just because of how far he has come. Continue with the PT for the recent issue that you discovered. Of course, many children can benefit from chiro, CST, and osteopathy, even for other concerns (in my opinion). That is why we are continuing with the chiro. > > > > Having said all of that, I am still having trouble completely letting go - so I do understand the struggle. > > > > , mom to , 2 2/3 years > > STARBand grad May 2009 > > Chiro and CST > > land > > Lop ear and plagio? > >  > > > > > Hi, > > Does anyone know whether there is a connection between lop ear and plagio? This is where the tip of the ear bends over and it can be corrected by surgery. After some research on the internet, we believe 's right ear has this. Our understanding is it is usually congenital. Looking at pictures we see it for sure by 6 weeks, and possibly sooner. 's plagio developed late and is amazingly not visible in top and side head pictures even past 3 months. We are almost sure the lop ear came before the plagio. Although maybe they are both caused by the preference to turn right. > > 's right ear is also very slightly pushed forward from the plagio and barely sticks out below. However, the lop ear seems to be more the upper cartilage. If you have followed my emails, you may recall we tried taping 's right ear with a splint for a few months, but gave up since it didn't seem to do any good and the skin started becoming a bit irritated. > > Honestly, the bend in the ear is not that bad and looks kind of cute, at least on a toddler. I'm hoping it is not caused from the plagio, since then I won't feel guilty and just accept it as something he was born with that can be fixed. We would probably decide not to fix it unless he complains about it. Does anyone know whether or not there is a connection between lop ear and plagio? > > Thanks, > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Kathy,Don't know if there is a connection but we're dealing with some of the same things. I had low amniotic fluid and a big baby born at 41 weeks. He is having surgery for an undescended testicle on Friday at 14 months. We also dealt with tort and plagio. Diane 14 months, STARband since Oct.On Apr 28, 2010, at 10:37 AM, Kathy Lora Jensen wrote: Thanks! This makes sense. I've already decided 's preference to turn right and physical imbalances that contributed to the plagio probably started in utero because he was oversized. He was 9lbs, 2ozs and I'm only 110lbs, if that. 's 7lbs,3ozs older brother was born with what most likely was tort and he still has very mild plagio. At least the bent ear tip was probably congenital and not my fault. I'm curious whether uterine constriction could also contribute to an undescended testicle. had surgery because his testicle never descended on its own. Does anyone know? Have other full term plagio babies also had an undescended testicle? Thanks again, Kathy, mom to almost 23 months and 5.5 years edpsp wrote: Actually they are related, but you still shouldn't feel guilty. Tort, plagio, and many ear deformities all can come from uterine constriction. Unless you want to beat yourself up about your uterus and pelvis not expanding enough, don't feel guilty. Besides feeling guilty won't help and may make things worse for all of you. The problem is that OB/gyns don't watch for this. As long as the kid's not in distress and is still growing they don't get concerned about positioning. They don't live with the consequences. Eli > > > > > > > > > > > Kathy, > > > > Given the recent measurements that you've posted and the length of time in the band, this makes total sense. If his ears are still sticking out, then I'm guessing that it is not related to the plagio. > > > > And, you've been here nearly as long as I have and I don't think that we've seen any other posts about this loop ear. It also sounds like it is more related to the upper part of the ear than the skull. > > > > So, no need to feel guilty. The two are probably not related. > > > > For a while, I felt bad at how 's ears looked, but over time, and I believe with the chiro that she has had, her ears now look totally typical to me. They stick out only the very slightest bit, but less than some kids who have completed normal heads. So, I've let the ears go as well. > > > > You should feel really good about 's progress now that his numbers are in the normal range for both level 3 and level 5 (I meant to reply to your post, but it got lost in my other emails). You have done so much to help his head and I'm guessing that you will have helped so many other things for him by doing all of the alternative treatments that you have. We are so grateful that we tried chiro for and the most obvious side effect was the cure of her reflux. We also saw visual improvement in her head as well, even if we don't have numbers to back that up. Neither of my kids have had any ear infections since they started getting adjusted and we all have been healthier this season than any season since the first child was born. > > > > I know the desire to seek for perfection - or in 's case, I just wanted what others would call "normal" by the measurements. (focusing too much on the numbers is an unfortunate side effect of my job). But, it has been a process for me to learn to start accepting her head shape. I don't believe that her head stands out these days (even though her numbers say that she is very much not normal) and I'm guessing that 's probably doesn't either, although I have never seen pictures. It just seems that with his numbers, it is hard to imagine that it could not look normal. > > > > For a while, I considered more treatments for her and I'm still not 100 percent sure, but I'm beginning to feel that enough is enough and it is time to spend my time, finances, and efforts on other things. My kids are starting to grow up and I'd love to put that money towards a gymnastics day camp for both kids this summer rather than more treatments that may or may not work due to her rising age. And, as gets older, her personality stands out more and I can start focusing more on that than on her head. is a little younger than and I was still struggling when she was approaching 2, but I'm hoping that as his personality and talents begin to shine, you can relax about what is probably a pretty typical head shape. With his numbers, I sincerely doubt that he will have any medical effects. It will probably never be noticeable to anyone but you. > > > > But that's the way it works - we spend so much time analyzing the head that it is hard not to see those little things that are not perfect. Or, it least this is the way it works for some of us (me included). And for those of us that banded late, there is extra guilt for not doing anything earlier. I believe that there is a kind of understanding between us mom's of older banded babies (no offense to moms of younger babies intended here). There is guilt for the head being flat, but then add on the guilt for not doing anything until late, and this is really hard to let go of. I speak from experience. It becomes more difficult as the toddlers approach their helmet graduation and we had wanted more improvement than we got. Yes, we had been cautioned that we wouldn't get all the way there, but we had secretly hoped that our toddlers could be an exception or at least would have gone further than they did. At least that was the way it was for me. > > > > In 's case, you did get further than some of us since his numbers are in the normal range. Think about it - do you really think that his numbers could have been better if banded at 6 months? It's possible, but many babies graduate with those numbers. It's hard to get a perfect 0 mm. I really think that you can let go of your guilt just because of how far he has come. Continue with the PT for the recent issue that you discovered. Of course, many children can benefit from chiro, CST, and osteopathy, even for other concerns (in my opinion). That is why we are continuing with the chiro. > > > > Having said all of that, I am still having trouble completely letting go - so I do understand the struggle. > > > > , mom to , 2 2/3 years > > STARBand grad May 2009 > > Chiro and CST > > land > > Lop ear and plagio? > >  > > > > > Hi, > > Does anyone know whether there is a connection between lop ear and plagio? This is where the tip of the ear bends over and it can be corrected by surgery. After some research on the internet, we believe 's right ear has this. Our understanding is it is usually congenital. Looking at pictures we see it for sure by 6 weeks, and possibly sooner. 's plagio developed late and is amazingly not visible in top and side head pictures even past 3 months. We are almost sure the lop ear came before the plagio. Although maybe they are both caused by the preference to turn right. > > 's right ear is also very slightly pushed forward from the plagio and barely sticks out below. However, the lop ear seems to be more the upper cartilage. If you have followed my emails, you may recall we tried taping 's right ear with a splint for a few months, but gave up since it didn't seem to do any good and the skin started becoming a bit irritated. > > Honestly, the bend in the ear is not that bad and looks kind of cute, at least on a toddler. I'm hoping it is not caused from the plagio, since then I won't feel guilty and just accept it as something he was born with that can be fixed. We would probably decide not to fix it unless he complains about it. Does anyone know whether or not there is a connection between lop ear and plagio? > > Thanks, > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Diane, also had low amniotic fluid starting at 34 weeks. I was induced at 37 weeks because the level became critical. She did not have tort and when she was born, her head looked fine. But, I wonder if it changed something about her head. I've often wondered if she had stayed in me longer and had more time to develop, whether her head would have been harder and we could have avoided the whole thing. And, she was small (5 pounds 5 ounces), but I didn't get very big (I also never measured larger than 30 weeks) so I wonder if she was somehow squished in there because of the fluid. But, there's nothing that can be done about that now. Lop ear and plagio? > >  > > > > > Hi, > > Does anyone know whether there is a connection between lop ear and plagio? This is where the tip of the ear bends over and it can be corrected by surgery. After some research on the internet, we believe 's right ear has this. Our understanding is it is usually congenital. Looking at pictures we see it for sure by 6 weeks, and possibly sooner. 's plagio developed late and is amazingly not visible in top and side head pictures even past 3 months. We are almost sure the lop ear came before the plagio. Although maybe they are both caused by the preference to turn right. > > 's right ear is also very slightly pushed forward from the plagio and barely sticks out below. However, the lop ear seems to be more the upper cartilage. If you have followed my emails, you may recall we tried taping 's right ear with a splint for a few months, but gave up since it didn't seem to do any good and the skin started becoming a bit irritated. > > Honestly, the bend in the ear is not that bad and looks kind of cute, at least on a toddler. I'm hoping it is not caused from the plagio, since then I won't feel guilty and just accept it as something he was born with that can be fixed. We would probably decide not to fix it unless he complains about it. Does anyone know whether or not there is a connection between lop ear and plagio? > > Thanks, > Kathy> Quote Link to comment Share on other sites More sharing options...
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