Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 I agree with you that this disease is so unpredictable. For years I have tried to figure out what will make me worse and each day it will change. I can eat a boiled egg one day and the next I can not. The unpredicablilty has made it impossible for us to be reliable. I hate that part the most. My family never knows what they will find when they get home...jekyl or hyde...lol. They will want to make plans to do this or that and I'll say ok, blah blah and they just shrugg their shoulders and say " mom you know your not going to do blah blah " Mom you cant even go to Fool Lion alone. It keeps me up at night and has given me nightmares that my children can rely on me. Sometimes I cant even talk with them I am so sick. I hope they can forgive and forget all the bad times. I know they dont truly understand, they cant. That is definelty the hardest part. I hope your doing well and are planning a beautiful Thanksgiving with your family. Chrissy Quote Link to comment Share on other sites More sharing options...
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