2004 CFRI Conference Announcement

[Guest guest]

17th Annual CFRI Educational Conference

One Day at a Time: Thriving with Cystic Fibrosis

August 6-8, 2004

Sofitel Hotel, Redwood City, California

This year’s CFRI conference committee has set the stage for a most exciting

event this summer. Topics will include advances in clinical care, stem cell

and basic research, and respiratory therapy. We will also meet a young woman

with CF who will share some of the challenges she has met – Lo Dietrich.

This year’s speakers/panelist will include:

Margaret Hodson, MD, of the Department of Cystic Fibrosis at the Royal

Brompton Hospital in London, England.

Mollard, MD, of the National Stem Cell Centre at Monash University

in Melbourne, Australia.

André Cantin, MD, of the Department of Medicine at the Université de

Sherbrooke in Quebec, Canada.

Saito, MD, of the Department of Pulmonology at the University of North

Carolina Children’s Hospital in Chapel Hill, North Carolina.

Dennis Nielson, MD, PhD, of the Department of Pediatrics at University of

California San Francisco in San Francisco, California.

Widdicombe, PhD, of the University of , California, and of our

CFRI Post Doctoral Fellowship.

Shelton, RRT, of Lucile Packard Children’s Hospital at Stanford in

Palo Alto, California.

Lo Dietrich, of the book “Spirit of Lo,” from Tulsa, Oklahoma.

A discussion panel will include the aforementioned doctors. A second panel

will include a group of teens and adults with cystic fibrosis.

Support groups will be scheduled to provide the time to share thoughts and

experiences with those others with CF and their extended families. A

memorial service is scheduled to honor those that were a part of our lives.

There will be an Art Gallery - not just any art gallery, but a collection of

art expressions from the CF community across the country which are a window

into the lives of those with cystic fibrosis. Constructed in partnership

with Breathing Room, this gallery will feature many expressions of the

visual arts. We encourage you to visit our websites, www.cfri.org

<http://www.cfri.org/> and www.thebreathingroom.org

<http://www.thebreathingroom.org/> , for further details. All members of

the CF community are invited to participate. In connection with the gallery

we will feature a speaker who will discuss the topic of art and healing.

CFRI is not alone is this important event. We are in collaboration with

United States Adult Cystic Fibrosis Association (USACFA) and Breathing Room,

and have the support of National Cystic Fibrosis Awareness Committee

(NCFAC), the Reach for the Stars Foundation and others. Together we raise

the global awareness of this disease with the hope of finding a cure and

improving the quality of life for those who face the challenge of cystic

fibrosis.

Scholarships are available to offset registration costs. Those with CF who

would like to attend should contact our office regarding our medical

guidelines. All are encouraged to respond to the “Call for Art” – deadline:

May 1, 2004.

CONTACT: CFRI at 2672 Bayshore Pkwy., Suite 520 Mountain View, CA 94043

cfri@...

progmgr@... www.cfri.org <http://www.cfri.org/>