what g.i. doctors do not think about

[Guest guest]

My g.i. doctor does think about this stuff. It is one thing for a

child who is gaining weight and height wcf to have problems

with poop in the diaper.

It is quite another thing for a child to have to face pre-school,

elementary school, middle school, junior high school and high

school (secondary school) and college much less adolescent

and young adult life with the same problem!

Children and adults with cystic fibrosis DO wish to live normal

social lives, so there is that aspect to the " poop " problem. There

is always the possibility of change in Enzymes, changes in diet,

both, and just plain down-home experimentation.

After decades of frustration, I found that I did very well on a

type of enzymes with more protease; I buy them for $37.00

from a supplier whom I shall not mention; that is one month's

supply. When I got the first order, five years ago, I had them

analysed by a well-known lab; they have more of everything,

every enzyme except Ultrase, and a bit less lipase and more

amylase--my g.i. doctor received the laboratory analysis and

I now get them for a pittance; and only a few capsules a day--

and no, I did NOT suddenly become pancreatic sufficient, and

have no other bowel disease save for GERD at this time, which

is well controlled by a proton-pump inhibitor, Aciphex.

When one gets desperate, one takes desperate measures; I do

alright on Ultrase 20 or Pancrease 20, but these work better!

I suppose this could become a real issue should I live long enough

to need DEPENDS or any other adult diaper!

Cheers! to all at cf parents, n Rojas