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[Guest guest]

Okay I am going to start by apologizing for not posting sooner. God

decided to smile on us and send the storm away from us. In fact the

weather is pretty nice today. My husband had unhooked alot of my

computer electric things (notice my high tech lingo) to get ready

just in case we had to leave so He finally fixed it back for me.

But I have been sick all week anyway. The nausea is starting to be

all day now it seems. I went to the ENT yesterday because the nose

and throat are hurting. He put me on 500mg of amoxil three times a

day because he saw some infection but he thought I was still in a

bad flare for my biggest problem. Then I went to the rheummy . My

ear is still red and painful and I asked him if my blood work was

any different with the flare going on from before. He said according

to the paper work you couldnt tell I was flared up. So if he hadnt

seen for himself the RP in his mind was still questionable. So I am

one of those who it doesnt affect your blood work. Then he started

looking at my records and became concerned and questioned my high

blood pressures and fast heartbeat. When I went to the hospital a

couple of weeks ago for my neck they were real concerned about it

then. It was 167 over 116 and my pulse was 128. I always have over

100 on the bottom and the top is skys the limit. The pulse is always

over 110. SO he said with the RP and my genes (NOT LEVIS) haha no

good there!! I need to see a cardiologist. I have never told him

about the group or I knew people with similar problems so he wouldnt

think I was making up symptoms. I let him tell me first about what

RP can cause. I also told him I had heard you can stay on cyotoxan

for only 2 years and I am already over 1 straight, then what can I

do. He said we will wait when that time comes. I know a miracle will

happen but I am a realist. If I cant maintain on a low dose of

cytoxan, and have to stay on the strong amount then how will the

drugs not as powerful help?

I would have to name each and everyone of you it seems to my get

well wish.I dont know whats happening the ones I bragged on that

where never sick it seemed have now gone down also. Thats you Heidi

and Glenda !!

I know what it is Heidi has Cakeitis (caused from baking toooo many

cakes) and Glenda from too many rain dances.

HELLO TO OUR NEW MEMBER JOSE and to all of you that havent posted in

awhile.

Bye for now and please lets all a have moment of prayer that all

this will stop with each one of us and all our family members for at

least a little while. We wont be too greedy, just maybe a little

break will help us. love and miss all of you NANCY