Welcome Yola

[Guest guest]

Yola, welcome. Glad to have you part of the group. We have a lot of knowledge and a lot of fun here.

I'm so sorry to hear that you have RP., I live in Calif, am 51 and have 3 daughters. My flares are mostly ears, nose and ribs. RP can affect the throat. If you continue to have problems i would definately have it checked out. Are you on any medications now? Just remember that we are all different and it can affect us all in so many differernt ways.

We do have other members in Austrailia. might be your neighbors. LOL

Go to our Foundation site at www.polychondritis.org and you will fine there Dr. Trenthams article and Dr. Karin Harps. I believe Dr. Harps is under links " e medicine" YOu might find out more about throat involement there. Also Dr. Buckners site is listed under research there. Please continue to ask questions or share what you have learned about RP with us.

looking forward to getting to know you better.

hugs

[Guest guest]

Yola

Welcome to the group! I am glad you found us even if it was by mistake.

You will find that this is the greatest group of people you will ever get to

meet. They are a wealth of information that is for sure. Ask all the

questions you like. If they don't have the answers they will help you find

them.

I live on the west coast of the United States in Oregon. I have had RP for

over 8 years. Mine is under control except for a minor flare once in

awhile. I am 45 am married to the same man for the last 28 years. We have

raise two children and are attempting to raise our oldest grandchild. She

is 7 and keeps us busy.

I lead a fairly normal life....that is for me anyway. I work 40 plus hours

a week and attempt to take care of my home and family. Lately have been

working too much according to the group but it will end soon.

Now for the answer to your question about the sore throat. This could be a

prelude to a problem with RP there. You need to have it checked out that is

for sure. Are you taking any meds for the RP? If so what kind? Predizone

is the drug that most of us use to keep the damage down due to the RP. I

think we all hate it but would rather deal with the pred. than the damage

that the RP causes.

Remember I am no dr. Go get it checked out and please keep posting we want

to get to know you better.

Lots of Love

Glenda