New with questions

[Guest guest]

LADRAGON10@... wrote:

> From: LADRAGON10@...

>

> Hi we are new to this list but not to onelist....

>

> My husband was recently diagonsed with HVC but has yet to have the liver

> biopsy. I have not been tested yet. We have some pressing questions if you

> could please...

>

> 1- sexually transmitted - yes/no

Usually not, chance is 1% in a monogamous relationship.

>

> 2- Interferon A - anyone know about birth defects? How long does this side

> effect last?

>

side effect lasts 6 months, most doctors recommend no pregnancy for 1 year.

then there is no increased chance of birth defects.

>

> Thanks so much!

> Luther & Amy, Parents to Chase 28 mos - Allergic to milk & beef!

>

> ------------------------------------------------------------------------

> ONElist: bringing the world together.

>

> Join a new list today!

--

Tate | valtate@... | Often in error, never in doubt

______________________________________________

Out of memory.

We wish to hold the whole sky,

But we never will.

______________________________________________

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[Guest guest]

Since getting this disease, I've gone out of my way to

find products to make my life easier. OXO makes a

line of kitchen products with large soft handles

(including a implement to open jars) that make things

easier. You can get them at places that sell upscale

pots and pans. I don't know you area.

--- Leckie <leckie@...> wrote:

> I don't know where to start. My husband is 37 and

> has had PA for

> about 8 years now. He has not done medication until

> this past year.

> I should say he reluctantly agreed to take

> medication. He takes

> Vioxx and MTX. They seemed to work for awhile, but

> now the swelling

> in his fingers is AWFUL. The doctor wants him to

> take Enbrel now.

> He seems to be having a bad flare-up (worse than

> usual) and I believe

> its stress related, in part. He is always going

> nonstop and works

> full time and also just finished 4 years of law

> school (going

> nights). He is now studying for the bar while

> continuing to work but

> is suffering terribly. He suffers quietly and

> doesn't complain much

> at all but I can see the way he moves now and he has

> trouble doing

> the simplest of things (ie opening a jar). I don't

> know what to do

> for him to make him more comfortable. Any

> suggestions. Also, is any

> on this list are active - can you tell me if you

> feel much better

> after exercising. My husband runs alot and says

> that the day after a

> run he always feels much better.

>

> Thanks for listening.

>

> in NJ

>

>

>

__________________________________________________

[Guest guest]

GILLIAN!

Here I have been reading about Hermes for the last couple of months and I am

still unsure as to what COLOR she is!

On a positive note, I chucked all my antidepressants and now making a go of

it totally on my own cold turkey. I feel great. No depression whatsoever.

Happy and positive. And able to cope with the PA without much problem

either. My next step is to get the RX diet pills to help me lose

weight.........

A very overweight,

LeAnn & Blossom

Heart Bandits American Eskimo Dog Rescue

Railroad Coordinator

www.heartbandits.com

[Guest guest]

, I have noticed there are not very many men out there with this

disease and the ones that have it have it have it at its worst. Wayne is

53, diagnosed 3 years ago and has suffered with chronic pain for most of

that. We were married just a few months before it started. I have learned

to let him do what he wants even though he often does more than he should

and pays for it.It was awful when he had to quit working. fortunately he

did have a disability policy from his work. It has made me feel very

helpless and has altered much of what I thought our life would be like. I

ask God daily to help us get through this and to find a treatment or cure

that works. I know when your husband suffers you do too. If you need a

spouse's ear, I am here. Sharon

[Guest guest]

I would also like to add that I have had great success w/ Pilot brand " Dr.

Grip " pens that are made for those w/ arthritis. You don't have to hold the

pen in a death grip to write!!!!

H.

[Guest guest]

If you choose to, you can alter the program slightly and subsitute the High

Intensity Interval Cardio Training (the 20 minute cardio solution) for the

step classes. So, for example, on Monday, Wednesday, and Friday, you would

do your weight lifting....and then on Tuesday, Thursday, and Saturday, you

can go to the step classes with her. Or something similar to this. I would

put together your plan of action and stick to it for the entire 12 weeks.

-

[Guest guest]

I think you can do both. I do cardio every day now. I do lite cardio on the

days I do weight training, and the HIIT cardio from the BFL book on the off

days. Sometimes I will even do some lite cardio in the evening on top of

that, all that is, is a long walk.

I think it is great that you have a friend to do this with. I am losing my

work out partner in 2 week, and we never did the BFL thing together, but we

would spot each other, and encourage each other a lot. I know I will not

quit, but for me, when there is not someone there to work out with, I fear my

just blowing off the morning work out. I am working all day, and sometime

put in a 12 or 14 hour day, make that 16 with the paper work. So I do not

have the time to miss an AM work out and make up for it.

Anyway, congrats on the weight loss you have had, and don't sweat the small

stuff, and its all small stuff!

(PJ)

" Once I was a prisoner

Lost in myself

With the world surrounding me

Wandering through the misery,

But now I AM FREE..... "

[Guest guest]

In a message dated 10-Sep-00 03:09:19 PM Eastern Daylight Time,

One@... writes:

<< I do cardio every day now. >>

Cardio every day is over training! Don't do it!!!! If you over train, your

muscles will be in a constant state of repair instead of growth. I have

experience with this program, not to mention training from former EAS

Champions and a personal trainer proclaimed by EAS to be the most successful

trainer in the most successful gym!

-

[Guest guest]

In a message dated 10-Sep-00 03:09:19 PM Eastern Daylight Time,

One@... writes:

<< I do cardio every day now. >>

Cardio every day is over training! Don't do it!!!! If you over train, your

muscles will be in a constant state of repair instead of growth. I have

experience with this program, not to mention training from former EAS

Champions and a personal trainer proclaimed by EAS to be the most successful

trainer in the most successful gym!

-

[Guest guest]

In a message dated 9/10/00 3:51:38 PM Eastern Daylight Time,

habibsangl@... writes:

<< Cardio every day is over training! Don't do it!!!! If you over train,

your

muscles will be in a constant state of repair instead of growth. I have

experience with this program, not to mention training from former EAS

Champions and a personal trainer proclaimed by EAS to be the most successful

trainer in the most successful gym!

>>

But this is what Porter Freeman did, the man you interviewed. I heard his

story too. I called EAS and they said there was nothing wrong with doing

cardio everyday as long as it was lite cardio on my weight training days.

What I do is working for me. I go to the gym every morning. On my weight

training days I get on the tread mill for 5 minutes to warm up, then go do my

weight training, then back to the tread mill for 20 min. On my cardio days I

do the 20 minute HIIT and that's it. At night sometimes I go for a walk

after dinner.

This is not over training at all. If I were to do HIIT every day then maybe,

but that is not what I said. I appreciate your not wanting me to over train,

and all your experience with << " training from former EAS Champions and a

personal trainer proclaimed by EAS to be the most successful trainer in the

most successful gym! " >> I think that is great and I respect that. I also

have learned from personal trainers, and I learned from Porter Freeman, I

also call EAS when in doubt. EAS told me this today when I called to confirm

what you said. He said this...

Porter Freeman did to HIIT almost every day, but he no longer does that now

that he is working here at EAS. He did that to lose more fat faster because

he had a lot to lose, but doing HIIT every day is not good. He then said

that what I am doing (the lite cardio) on my weight training days is good. He

said that EAS does not call lite cardio such as a fast paced walk, or

playing tennis or basket ball a cardio work out. They call a cardio work out

what would be high intensity like in the HIIT cardio work out. The rep at

EAS said that what I was doing was fine and not to be considered over

training. His name is and was there at 530pm EST.

I wish you peace,

" Once I was a prisoner

Lost in myself

With the world surrounding me

Wandering through the misery,

But now I AM FREE..... "

[Guest guest]

In a message dated 10-Sep-00 05:36:09 PM Eastern Daylight Time,

One@... writes:

<< This is not over training at all. If I were to do HIIT every day then

maybe,

but that is not what I said. >>

Body for Life was not written when Porter did the 1997 Transformation

Challenge. The book came out not quite two years ago. In fact, Porter's story

is in it. Porter did what his trainer Shreeves told him to do, just as I

did for my last 2 weeks of the Challenge. will train you based on what

you have to work with, as most trainers will do. And if someone comes to me

and says they want to make the absolute best results they can and are

absolutely committed to it, then I won't coach them BFL.

Body for Life is a change in lifestyle. It's a way to learn a new way of

eating, exercising, living and breathing. This program is for people who

aren't that knowledgable in any of those areas and going through a

traditional, short term weight loss program has proven too difficult or

uncomfortable.

If you want to do something other than BFL that's fine, but obviously you

have some interest in the BFL method, as do other people here, otherwise you

wouldn't be here. So that's the parameters we advise through with new people.

was specifically interested in doing BFL despite her partner's wishes

to do their own program. Therefore, she was asking a question within the

parameters of BFL.

In regards to BFL, 5 days of cardio is too much. I don't want us to have to

preface everything with whether it's BFL or not....because that's what this

group is about, BFL, hence the group name " bodyforlife " . There are a thousand

other BFL groups and a million other fitness support groups....and you chose

this one.

Furthermore, EAS is not connected to BFL anymore and therefore is not

obligated to give advice in regards to doing the BFL method. If you tell them

that you are doing BFL they are knowlegable about BFL and will advise within

the parameters of BFL.

I hope you understand the purpose of this Body for Life support group and

have fun learning this method as I know it's new to you and not the usual way

of training.

- the CO

(where's the Sarge when you need him to shape up the new recruits? Out with a

hang nail! J/K SARGE!!!! We miss your knowledge and intimidation tactics!!!)

[Guest guest]

,

On my first challenge I did cardio every day. I did an hour of walking on

an uphill treadmill at a fast pace every morning. My personal trainer had me

wear full sweats and drink lots of cool water while I did this to keep my

body core cool. It worked for me since my hips do not like me when I run.

On my weight training days I would do my weights and if time permitted I

would add an extra 30 minutes of cardio after the weights. I did drop fat

but keep in mind that too much cardio will burn muscle too. Be sure to

consume enough calories to support the extra work. Once your body burns up

all the carbs you have it starts on muscle for fuel.

~Laury

[Guest guest]

In a message dated 9/11/00 2:54:48 PM Central Daylight Time,

kit.keyes@... writes:

> Is that because they pay attention, listen better and follow

> advice.. because they have better support systems..smarter....? Or jus

Kit, an obvious grad from the how to win friends and influence woman life

school :=)

[Guest guest]

In a message dated 23/04/01 10:03:24 GMT Daylight Time, PRRRR@... writes:

.. Here are my questions... Does PA run in family's... I know there is a genetic marker but is it hereditary?

Hi,

Not sure. It didn't run in my family, but I know it runs in a lot of other families. Perhaps you could 'create' a poll for this?

Mike (from the UK)

[Guest guest]

In a message dated 04/23/2001 5:03:54 AM Eastern Daylight Time,

PRRRR@... writes:

<< He became depressed and started relying on alcohol as a pain killer. The

predisone MTX and alcohol eventually destroyed his liver. Well there is the

story in a nut shell. Here are my questions... Does PA run in family's >>

Yes, it has a genetic connection a, but it sounds like it was the liver

that did him in - ok, here I go with a little preaching again - I've had

elevated liver enzymes on MTX without having had ONE DROP of alcohol - please

take the warning of no booze with MTX seriously. We can all live without

alcohol, but not without livers.

[Guest guest]

HI PAULA

MY SUGGESTION WOULD BE FOR YOUR COUSIN TO CONSULT WITH A

RHEUMATOLOGIST. IT TOOK MY INTERNIST ALMOST A YEAR TO FIGURE OUT WHAT

WAS GOING ON WITH ME AND TO SEND ME TO A RHEUMATOLOGIST. GOOD LUCK TO

HIM.

[Guest guest]

Hi a

I am not a medic but i think that PA and Psoriasis may have a genetic or even contagious link - the experts say no. My reason is that my wife gets scalp psoriasis and occasionally suffers with joint problems - i did not realise thios until after we had been married for some years. I got PA about 7 yrs ago and only then started to wonder about this issue.

There is definetley a need for research on this topic.

Nigel ) (uk)

[Guest guest]

I've always heard the psoriasis was passed on genetically. I don't think

it's contagious, though. My sister has a small amount of scalp P, but no

one else in my family does. I think it would be much more prevalent in

society if it was contagious.

Sinead

>From: NippyNige@...

>Reply-

>

>Subject: Re: [ ] new with questions

>Date: Thu, 26 Apr 2001 10:44:37 EDT

>

>Hi a

>

>I am not a medic but i think that PA and Psoriasis may have a genetic or

>even

>contagious link - the experts say no. My reason is that my wife gets scalp

>psoriasis and occasionally suffers with joint problems - i did not realise

>thios until after we had been married for some years. I got PA about 7 yrs

>ago and only then started to wonder about this issue.

>

>There is definetley a need for research on this topic.

>

>Nigel ) (uk)

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

At 08:19 PM 4/22/01 -0500, you wrote:

Hello All,

My name is a

Hi a, Welcome to the group and I hope you are able to get some

answers and some help for your cousin, Steve. So sorry to hear of

the loss of at such a young age. I was a medical technologist

and did HLA testing for about 20 years and while there is some

correlation to HLA B27 and PA, it is certainly not a diagnostic test for

the disease. Steve needs to see a good rheumatologist (arthritis

specialist) as soon as possible. As evidenced by the death of ,

the wrong kind, the wrong dosage, or the wrong combination of drugs can

be fatal.

Does PA run in

family's... I know there is a genetic marker but is it hereditary?

PA does run in families and can occur in children but most often is first

seen is 20-40 year-olds. At present, although there are DNA studies

being done, it has not yet been determined if there is a single gene

marker or if there are multiple genes that when associated in certain

combinations cause or predispose a person to the disease. It is

possible that it is a combination of genes and environmental factors that

cause PA. I hope this may answer a few of your questions. I'm

hoping for a better outcome for your cousin, Steve, and that there will

be no other family members afflicted.

Nadine

[Guest guest]

In a message dated 27/04/01 03:23:44 GMT Daylight Time, almostturner@... writes:

.. I don't think it's contagious, though.

Sinead,

IT IS not contagious, unless someone 'tells' us different :-)

Mike (from the UK)

[Guest guest]

>>. I don't think

>>it's contagious, though.

>Sinead,

>IT IS not contagious, unless someone 'tells' us different :-)

>Mike (from the UK)

And NOT a beutician. I had one tell me that she was not supposed to cut my

hair because Psoriasis was contagious. mentioned it to my doctors and they

all said to change your beauticican as it is NOT contagious.

The dermatologist 2 weeks ago said they found the gene linked to P. Not

sure if it will do any good or not but a little progress is better than

none.

Lorna

colfax, WA

[Guest guest]

Hello,

Welcome to the group. If you have had

tympanoplasties, you have had your eardrums rebuilt.

Tympan/o is your tympanic membrane, which is medical

lingo for eardrum.

My husband has cholesteatoma and is fortunate to have

a good doctor. It must be terribly difficult if you

are on the move often. I will try to answer your

questions as best I can, but be assured you will

receive more responses.

1. My husband has his ears cleaned every 6 months.

His doctor is meticulous about it and told us what

could happen (or most likely what would happen) if he

did not follow through with regular cleanings.

2. The drainage is not cholesteatoma but could be as

a result of c-toma. The debris could definetly be a

result of c-toma and depending on what type of surgery

you have had, this could be taken care of with regular

cleanings in the office. This will also depend on

what your doc says when you see him.

3. In my opinion, constant drainage is not normal and

should not be treated with antibiotics all the time.

I sometimes think docs want to treat these as ear

infections instead of referring to an ENT.

4. My husbands cleanings have never consisted of an

irrigation procedure because of the water (this might

also depend upon the procedure you had done). His doc

uses tiny forceps and a micro-otoscope and physically

removes ear wax and/or debris or c-toma (he has a

mastoid bowl). I wouldn't consider this safe, but I am

thinking of my husband and the procedure he had done.

He was told that water is the enemy.

5. We have a member who recently had surgery and was

having some strange sensations with her tongue, but I

don't know if it was in conjunction with the drops. I

will contact her and ask her about this.

Take all of your questions with you to the doc. Make

sure he is knowledgeable about cholesteatoma. If you

are not comfortable with him/her, or even feel like

you have been " shorted " on your appointment, get a new

one.

I hope this has helped some. Maybe if we had more

info we could get more specific. Please keep us

posted, we do care.

Michele

--- discoshiva67 <discoshiva67@...> wrote:

> Although I am pretty sure

> there was no tympanoplasty, only mastoidectomies and

> rebuilding of eardrums. Both sides. Last surgery

> 10+ years ago.

>

> Anyway, I've moved several times and find it very

> frustrating to go to a new doctor. It seems like

> they don't really want to

> take the time to CLEAN my ears. They just glance at

> them and say, " so, are your hearing aids working out

> for you? " or

> some other lame crap. Yes, they'll suck it out if

> there's a lot of obvious debris, but I feel that no

> one but the last doctor who

> actually operated on my ears took the time to clean

> both ears, especially the " dry " one.

>

> My questions:

> 1. Anyone else have problems getting the full

> attention for cleaning?

> 2. I guess I never realized that the " debris " or

> " drainage " I experience is actually cholesteatoma.

> Is it? Is it dangerous still --

> like, still damaging bone in my ear?

> 3. It seems like one ear is constantly draining. Is

> this normal? Anyone else have this? The docs just

> say, oh, use these

> drops when it drains. " but I don't feel comfortable

> using antibiotic drops every single day. Makes my

> ear too moist especially

> with hearing aids.

> 4. I've been to one or two docs that use irrigation

> and / or recommend me irrigating at home. Is this a

> safe and effective

> way to keep the ear " clean " ? What about the fact

> that cholesteatoma and water = bad combiination?

> 5. I have strange sensations in my tongue when using

> drops or if I clean right ear with qtip. Should I be

> worried about this?

> I have an appointment monday and plan to ask the

> (new) doctor about this. But it seems to me I've

> asked other doctors

> and they have been dismissive.

>

> THANKS for your replies!!!!!!!! glad I found this

> group.

>

> discoshiva67

>

>

>

__________________________________________________

[Guest guest]

Thank you for such a detailed response, michele.

I actually just went to the doc (ENT) this morning and it seemed to

go well. He assured me that there are no cholesteatomas in my ears.

Apparently the left ear just needs wax and skin cleaned. The right ear he said

" weeps " which means the inside of it is inflammed, again no c-tomas. He said

wearing hearing aids keeps the inside of my ear too humid, which makes my

ears seem not to be " dry " .

The rememdy is new drops to get the inflammation down. Then once the

ear is not irritated, he said to try a few drops of rubbing alcohol

before bed to dry out the ears. It burns too much for some people, but for

others it works wonders. We'll see.

The tongue sensations he said are nothing to worry about, and result

from the fact that those nerves are getting antibiotic drops on them because

of the proximity to the inner ear, which stimulates them but won't hurt

them. So he says.

I'm sure I should give up my q-tip habit. My ears itch, so I use

q-tips, which irritates the inside of them. I forgot to talk to the doctor

about

that. Oh well.

Thanks Again!! Discoshiva67

> Hello,

>

> Welcome to the group. If you have had

> tympanoplasties, you have had your eardrums rebuilt.

> Tympan/o is your tympanic membrane, which is medical

> lingo for eardrum.

>

> My husband has cholesteatoma and is fortunate to have

> a good doctor. It must be terribly difficult if you

> are on the move often. I will try to answer your

> questions as best I can, but be assured you will

> receive more responses.

>

> 1. My husband has his ears cleaned every 6 months.

> His doctor is meticulous about it and told us what

> could happen (or most likely what would happen) if he

> did not follow through with regular cleanings.

> 2. The drainage is not cholesteatoma but could be as

> a result of c-toma. The debris could definetly be a

> result of c-toma and depending on what type of surgery

> you have had, this could be taken care of with regular

> cleanings in the office. This will also depend on

> what your doc says when you see him.

> 3. In my opinion, constant drainage is not normal and

> should not be treated with antibiotics all the time.

> I sometimes think docs want to treat these as ear

> infections instead of referring to an ENT.

> 4. My husbands cleanings have never consisted of an

> irrigation procedure because of the water (this might

> also depend upon the procedure you had done). His doc

> uses tiny forceps and a micro-otoscope and physically

> removes ear wax and/or debris or c-toma (he has a

> mastoid bowl). I wouldn't consider this safe, but I am

> thinking of my husband and the procedure he had done.

> He was told that water is the enemy.

> 5. We have a member who recently had surgery and was

> having some strange sensations with her tongue, but I

> don't know if it was in conjunction with the drops. I

> will contact her and ask her about this.

>

> Take all of your questions with you to the doc. Make

> sure he is knowledgeable about cholesteatoma. If you

> are not comfortable with him/her, or even feel like

> you have been " shorted " on your appointment, get a new

> one.

>

> I hope this has helped some. Maybe if we had more

> info we could get more specific. Please keep us

> posted, we do care.

>

> Michele

..

> >

[Guest guest]

Hello,

Great news!! No c-toma is great. My hubbys doc explained to me

that with a mastoid bowl, the cholesteatoma still grows, but dries

like dry skin and sluffs off, hence the cleanings. Kind of sounds

like what you may have had going on. I always used alcohol to clean

my hubby's ear after surgery because it dries so quickly.

I'm happy that you got good news, instead of the dreaded monster.

Take care,

Michele

> > Hello,

> >

> > Welcome to the group. If you have had

> > tympanoplasties, you have had your eardrums rebuilt.

> > Tympan/o is your tympanic membrane, which is medical

> > lingo for eardrum.

> >

> > My husband has cholesteatoma and is fortunate to have

> > a good doctor. It must be terribly difficult if you

> > are on the move often. I will try to answer your

> > questions as best I can, but be assured you will

> > receive more responses.

> >

> > 1. My husband has his ears cleaned every 6 months.

> > His doctor is meticulous about it and told us what

> > could happen (or most likely what would happen) if he

> > did not follow through with regular cleanings.

> > 2. The drainage is not cholesteatoma but could be as

> > a result of c-toma. The debris could definetly be a

> > result of c-toma and depending on what type of surgery

> > you have had, this could be taken care of with regular

> > cleanings in the office. This will also depend on

> > what your doc says when you see him.

> > 3. In my opinion, constant drainage is not normal and

> > should not be treated with antibiotics all the time.

> > I sometimes think docs want to treat these as ear

> > infections instead of referring to an ENT.

> > 4. My husbands cleanings have never consisted of an

> > irrigation procedure because of the water (this might

> > also depend upon the procedure you had done). His doc

> > uses tiny forceps and a micro-otoscope and physically

> > removes ear wax and/or debris or c-toma (he has a

> > mastoid bowl). I wouldn't consider this safe, but I am

> > thinking of my husband and the procedure he had done.

> > He was told that water is the enemy.

> > 5. We have a member who recently had surgery and was

> > having some strange sensations with her tongue, but I

> > don't know if it was in conjunction with the drops. I

> > will contact her and ask her about this.

> >

> > Take all of your questions with you to the doc. Make

> > sure he is knowledgeable about cholesteatoma. If you

> > are not comfortable with him/her, or even feel like

> > you have been " shorted " on your appointment, get a new

> > one.

> >

> > I hope this has helped some. Maybe if we had more

> > info we could get more specific. Please keep us

> > posted, we do care.

> >

> > Michele

> .

> > >

[Guest guest]

Hi

Nice to here from you. Please e-mail me with the food you are

::::::

:::::::::eating now from the time you get up to the time you go to sleep

Deborah ,