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,

You wrote, " I think, and this is just my opinion; that a vast majority of the

health care practitioners out there still believe that Pancreatitis is a

disease of drunks! "

One reason that most physicians assume a person's Pancreatitis is caused by

alcohol is because all of the medical documentation states this as the number

one cause. We know, from the poll done on this board regarding presumed

causes, that second to idiopathic at 17%, alcohol comes in 2nd at 13%. Of

course,

that is only a bit more than a tenth of the poll.

Pancreatitis is one of the leading disease associated with alcoholism. It is

actually the second cause of death in alcoholics. Chirrosis of the liver is

the first. I commend the people who came forth and shared honestly that

alcohol played a factor in their disease. It isn't their fault that the

documentation states alcohol is the leading cause. They should not be the brunt

of our

bashing or treated like the enemy.

This is a similar situation as persons who develop AIDS. That was initially,

primarily a disease associated with homosexuality. As a nurse, I saw several

people who developed AIDS from needle sticks that were very much

heterosexual. Change came after much education, however, most of the

literature

probably states that AIDS is a disease of homosexuals. They should not be the

brunt

of our bashing or treated like the enemy.

Neither should the doctors, and particularly not by name. That serves no

purpose. For every bad experience, there is a good one to match. The purpose of

the PAI is not to slam dunk and bash the healthcare profession. There are

other organizations that are established to take that information and act on

it.

Our goal is to provide education, support, and advocacy for persons with

pancreatitis. We want to be treated with respect and dignity, and we have to

treat others that way to. If we can't, we have to turn the other way and focus

our energies on those things that will help us enact change, those things that

will bring us together in a common goal of improving the quality of life for

persons with pancreatitis, not isolate us as antagonistic to the system.

It is said that, " If I am not the problem, then there is no solution. " That

is a hard truth to swallow, but can be very empowering as well. It is

important to be a part of the solution and not the problem. Verbal assault,

character assassination, or retaliating with anger only add fuel to the fire.

We need

to get involved with local and federal congressional hearings & policy

changes, make our voice hear on radio and in the paper. We have an amazing

forum

here that gives us an opportunity to collect research data and generate papers

to support changing the facts documented in medical books. Contact your

local medical school and volunteer to talk to the students. Invite medical

students to join the board and share their stories. Together, listening to each

other, we will see change..

Here are the results from the current poll:

17.35% 34 Idiopathic

13.27% 26 Alcohol

10.20% 20 SOD

09.69% 19 Pancreas Divisum

09.18% 18 Biliary or Previous GB Surgery

07.65% 15 Obstructive Pancreatitis

06.12% 12 Metabolic / High Trig / Calcium

06.12% 12 Hereditary

05.61% 11 Trauma

09.18% 09 No Confirmed Diagnosis

03.06% 06 Drug / Medication Reaction

01.02% 02 Cystic Fibrosis

00.51% 01 Hyperparathyroidism

00.51% 01 SPINK1 or PSTI Gene Mutations

0% 0 Tropical Pancreatitis

Keeping you in thought & prayer,

Karyn E. , RN,

Exec. Director PAI / 1-

KarynWms@...

http://www.pancassociation.org

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