Re: Advice/ help please- tobramycin

[Guest guest]

Just want to let you know the IV solution of Tobramycin must have changed.

My son is using it for inhalation. Sabex, in Quebec, now makes a version

that is preservative-free ... it was two out of the three preservatives that

were thought to be the culprits to cause bronchospasm for some people when

the IV solution was inhaled.

When my son first started using it, he noticed it didn't smell great but he

says he can't even notice the smell now. I am not very aware of it when I am

near him doing the nebs (then again, I am usually stuffed up with

allergies).

The glass vials now have a rubber-in-metal top. The pharmacist told us we

would need to use a tool to pry it off but we have found it easy to get off

by just giving it a little twist first and then pushing the top up and

sideways with the thumb to pop it off.

I have not noticed any oily residue in the nebulizers. We clean them, the

same as always, by running dish detergent and hot water through them, rinse

well, then boil.

Although, we are using the Tobramycin IV solution instead of Tobi, my son's

cough has increased since starting it. We don't know if it is related to the

tobramycin or if something else is going on. Has anyone else experienced

cough increase from preservative-free Tobramycin (not Tobi)?

M

Re: Advice/ help please

....> There are some people who just don't do well on TOBI, but do well on

the " old " version of tobramycin (no bronchospasm or hoareness).

>

> The " old " version of tobramycin is a nasty-smelling, oily solution in

> a glass vial that you have to use a hypodermic syringe to get the med

> out of the vial and into the neb cup. It's intended used is IM

> injection, but doctors got desperate for something new to replace

> IM's and IV's so that's when they started having patients inhale it.

>

> We used to mix the oily, stinky med with a couple cc's of sterile

> saline for to inhale. ... The nebs were a mess to clean from the

oily residue.

[Guest guest]

YES, We make a version similar to this . We use the NEBCIN

(preservative free

tobramycin) as well. The water amount is also changed. It works VERY

well & is

literally a third of the cost. We call ours TOBRASOL.....

It is in a syringe, with cap(easy removal). They are sent in a zip

lock bag. Very

easy to fit in refri as well......Folks have been using it inhaled for

years....at least 20

I know of. ....Works GREAT............. Best wishes to you .

LOVE Y & HUGS,

grandmoMBEV

Re: Advice/ help please- tobramycin

Just want to let you know the IV solution of Tobramycin must have

changed. My son is using it for inhalation. Sabex, in Quebec, now makes

a version that is preservative-free ... it was two out of the three

preservatives that were thought to be the culprits to cause bronchospasm

for some people when the IV solution was inhaled.

When my son first started using it, he noticed it didn't smell great but

he says he can't even notice the smell now. I am not very aware of it

when I am near him doing the nebs (then again, I am usually stuffed up

with allergies).

The glass vials now have a rubber-in-metal top. The pharmacist told us

we would need to use a tool to pry it off but we have found it easy to

get off by just giving it a little twist first and then pushing the top

up and sideways with the thumb to pop it off.

I have not noticed any oily residue in the nebulizers. We clean them,

the same as always, by running dish detergent and hot water through

them, rinse well, then boil.

Although, we are using the Tobramycin IV solution instead of Tobi, my

son's cough has increased since starting it. We don't know if it is

related to the tobramycin or if something else is going on. Has anyone

else experienced cough increase from preservative-free Tobramycin (not

Tobi)?

M

Re: Advice/ help please

....> There are some people who just don't do well on TOBI, but do well

on the " old " version of tobramycin (no bronchospasm or hoareness).

>

> The " old " version of tobramycin is a nasty-smelling, oily solution in

> a glass vial that you have to use a hypodermic syringe to get the med

> out of the vial and into the neb cup. It's intended used is IM

> injection, but doctors got desperate for something new to replace IM's

> and IV's so that's when they started having patients inhale it.

>

> We used to mix the oily, stinky med with a couple cc's of sterile

> saline for to inhale. ... The nebs were a mess to clean from the

oily residue.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

GOOOOOOOOOOOOOO, Bev, Lois and Cystic Fibrosis Pharmacy! I use

Nebcin, too! Thank you for the informative post (as all of yours are),

Love, n Rojas

Re: Advice/ help please

...> There are some people who just don't do well on TOBI, but do well

on the " old " version of tobramycin (no bronchospasm or hoareness).

>

> The " old " version of tobramycin is a nasty-smelling, oily solution in

> a glass vial that you have to use a hypodermic syringe to get the med

> out of the vial and into the neb cup. It's intended used is IM

> injection, but doctors got desperate for something new to replace IM's

> and IV's so that's when they started having patients inhale it.

>

> We used to mix the oily, stinky med with a couple cc's of sterile

> saline for to inhale. ... The nebs were a mess to clean from the

oily residue.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------