New York City Area - CF parents

[Guest guest]

We are starting a support group for parents/caregivers in the NYC

area. Looking to do live and/or possibly weblog connection for

parents/caregivers.

Are you in NYC area? or know of those who are?

Phone and live contact with other parents(in addition to the web!)

has been so helpful getting used to our changed life this last

year. We have had three meetings discussing a range of topics:

cleaning nebs, what kids like to eat, or not, home iv, what

info/type of support is most useful for new parents ,how is

everybody doing, etc.

love to hear

Robin mother of Ada, 3yrs wcf and Emma 10 wocf

[Guest guest]

Robin--

Have you asked local CF Centers if they would post it? Check w/ St.

s, Schneiders, Good Sam, Stonybrook, Westchester Medical Center and

NJ.....

Also, if you post the dates & location I will post it on my office website.