taken off the meds

January 4, 2003

Chuck, it's always so good to finally hear from you. Did Heidi's post scare you into posting? LOL

I'm so sorry you are flaring now. Please don't wait too long to stop the flare. You shouldn't have to suffer and don't want any more damage done.

They are talking about putting me on Arava. What was your experience on it? I didn't like the side effects that I read.

Please take care and POST more often.

hugs

January 4, 2003

Hi Everyone,,

I know it's been a while since i posted last so i thaught i would

bring you all up to date. Dr.T had me stop taking the Arava due to

high liver enzymes test, i go back for more blood work next week, and

then who knows what we will do from there.I feel great being off the

medication, more energy, more alove but now as you guessed i am

having a major flare in my left ear, which is weird because it always

starts in my right but oh well!!! I am trying to hold off taking the

prednisone intil after my appointment on the 8th but don't know if i

will be able to tolerate the pain and no sleep that long. oh well

thats my life in a nut shell ha ha aha.... hope everyone is doing

well and flare free,,,i just wanted to say hello and let you know i

still visit the site to see my friends.....and welcome DONNA!!!!

have a nice weekend everyone.......Chuck

January 4, 2003

WAY TO GO CHUCK,

I have been off the pred for awhile but still take the awful Cytoxan.

Just hang in there and maybe the new flare will settle down without

having to take to much pred.

Think positive, I know I will for ya.

Tell your ears its a new year and they need to behave themselves.

See if it works. HAHA

Hugs,

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