Re: New-tomorrow will be day one

[Guest guest]

Sheryl,

Please email Grammy Bauer and ask her for the names of compounding

pharmacists who are familiar with SCD.

grammy_bauer@...

Mimi

> Hello,

> I will be starting the diet with my daughter tomorrow. I have just

> made my first batch of soup (and I mean that literally, never in my

> life have I made home made soup. Had to call my cousin to find out

> how to make the beef broth.)I am waiting on BTVC and my yogurt maker

> which I ordered earlier. I have on hand the scd legal supplements

> from Kirkman and the progurt from GI health. I have been reading old

> posts here, the pecan bread webiste and Elaine's website. So I guess

> I am ready to dive in.

> My daughter's diagnosis is mitochondrial disease, she has seizures

> and is dev delayed. As of the last year since being on canned formula

> has had a terrible time with vomiting, and constipation. She does not

> have a diagnosis of autism, but to me she has some of the symptoms.

> Also she is tube fed. Before learning of this diet I had firmly

> convinced our GI to assist me with putting her on foods I cook at

> home and blend. Also waiting on commercial blender (that can even

> blend up a rake).Then I heard about this and I felt I had finally

> arrived at the right thing. Previously my daughter was on the

> Ketogenic diet for 2 years with moderate success and so I feel

> confident in going into this.

> My first questions have to do with medications and supplement. She is

> on many (Keppra, Tranxene, Trileptal, Carnitine, COQ10, vitamin B2,

> Vitamin C, Vitamin E, Alpha Lipoic Acid, Prevacid). Do you think that

> I some of them compounded? Not sure how to tell the pharmicist to

> make them fit with this diet. Any suggestions to help me get off to a

> good start is appreciated.

> Sheryl

>

>

[Guest guest]

Welcome Sheryl,

<< My first questions have to do with medications and supplement. She

is

> on many (Keppra, Tranxene, Trileptal, Carnitine, COQ10, vitamin B2,

> Vitamin C, Vitamin E, Alpha Lipoic Acid, Prevacid). Do you think that

> I some of them compounded? >>

It depends on what the ingredients are in each med/supplement.

I found this on our old SCD list about carnitine:

" I think the poops should improve over time..... just try to be

patient.

Question, though...... Does he really need the l-carnitine? In my

experience (with kids on the Keto diet), carnitine increases ketones

and also can cause looser BMs. He's eating plenty of meat so I would

question whether he really needs the supplement since carnitine is

available in the meat.... Patti "

Sheila, SCD Feb. 2001, UC 23 yrs

mom of and