CF testing

[Guest guest]

Hello,

Can someone answer a question for me?? I have a son who just

recently turned 12 months old. Pretty much, since the time that we

brought him home from the hospital, he has had trouble with

breathing. One minute his breathing seems to be just fine and the

next it sounds like rice crispies are pop pop popping away in his

lungs. Sometimes, he concentrates all of his efforts on breathing

alone. I cannot seem to identify any triggers to this breathing

problem. And, sometimes it spontaneously clears on its own without

the assistance of Albuterol. In the beginning, it happened maybe

once a week with an episode lasting for only a few minutes. Now,

without the use of Pulmacort and Albuterol it is twenty four hours a

day.

He has coughing fits, as well. These coughing fits have been bad

enough that they actually trigger him to vomit. Other times, it is

a barky cough that I notice.

Bowel movements are odd, too. Somedays, he may only go once or

twice. Other days (most often the case), he may go 6-8 times.

These " movements " are very FOUL smelling and extremely mucousy.

After having to be on Prednisolone for 1 1/2 months, his doctor

referred him to see an allergy/asthma specialist.

Going on the presumption that he has asthma, she (the doc) put him

on Regaln (gastric stimulant). She thought that he might have

GERD. This, of course, made his stools mroe frequent. Needless to

say, since he was having more bowel movements and did not improve

respiratory wise on the Reglan, she stopped it.

It was at this point that she began to suspect CF. She ordered a

sweat chloride test. The results came back negative with a result

of 12. She was surprised. I kid you not.

Sorry, long story, I know. My question to anyone with a possible

answer is this: