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hello.. I have sleep apnea as well. I use Cpap. it

has helped me tremendously with being less tired and

less exhausted. I also have AS.. ankylosing

spondylitis... painful right now. I have had AS for

many years.. and do my darnedest. I work full time

and love my job. Thank goodness I can do my job with

AS... and will continue to do so.

I just want to be well. It is so very important to

me.

love you all

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Hi .

Sounds like you are just having loads of fun... NOT!

How did you get used to the c-pap........?

As for AS my sister has had it about 20 years... she can't work as she

just can't sit up for long periods of time. That's why she's not on this

list anymore either because she can't sit in front of the computer.

She is a civil engineer and at one time worked on the space shuttle

equipment. But like you she just keeps on plugging at whatever she can do.

I think she has a home business now and has been working to get a magazine

started for people like our oldest brother, Bobby who was mentally

impaired by Anoxia at birth.. our mom's arthritis held him in the birth

canal too long.

Thanks for the bright and chipper mailings:)

Liz

~~~~~~

" The truly creative mind in any field is no more than this: A

human creature born (extraordinarily) sensitive. To him/her a touch is a

blow, a sound is a noise, a misfortune is a tragedy, a joy is an ecstasy,

a friend is a lover, and failure is death.--Pearl S. Buck

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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  • 8 months later...
Guest guest

Thanks for the info on the calcium, Sue. I am well into the old time

solutions. Besides most of us don't get enough, and that's a great

way to have some. Glad to know I'm not the only one up weeing half

the night.

> For what it's worth, Ben tried a few different sleep aids before

settling on Ambien. He used Temazipam throughout his last treatment,

but this time it made him really groggy in the mornings, so he

switched to Ambien, and it's worked really well. He still gets up

alot at night to pee, because he's determined to drink, drink, drink,

and would rather get up and tinkle through the night if it means he's

flushing out his system. But for what it's worth, sometimes the

Ambien isn't consistently effective. But we've both found that if we

take Calcium before bed, it helps us both sleep. I had a gastric

bypass a few years ago, so the only kind of calcium that I absorb

well is Calcium citrate, so I just keep a bottle of it on my

dresser, and we usually both take it at nighttime. We both notice our

un-fitful sleep when we forget.

>

> I heard a long time ago that taking calcium before bed can help you

sleep, but also that that was an 'old wives tale'. I don't know all

the ins and outs, just that it seems to work for us.

> Maybe this will help someone else, too.

>

> Bless you all,

> Sue B

> in NJ

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Guest guest

I’m not

sure if it was tamazepam, but I know there was one

that worked ok for getting me to sleep, but I couldn’t wake up the next

day, I was so zonked. I finally settled on ambient as well. As, you found, it

wasn’t 100% effective, but it was the best thing they came up with. Often times there is some truth to those “old wives”

tales and home remedies. And doctors are often very reluctant to admit their

value. –dz-

> For what it's worth, Ben tried a few

different sleep aids before

settling on Ambien. He used Temazipam

throughout his last treatment,

but this time it made him really groggy in the mornings,

so he

switched to Ambien, and it's worked really well.

He still gets up

alot at night to pee, because he's determined to

drink, drink, drink,

and would rather get up and tinkle through the

night if it means he's

flushing out his system. But for what it's worth,

sometimes the

Ambien isn't consistently effective. But we've

both found that if we

take Calcium before bed, it helps us both

sleep. I had a gastric

bypass a few years ago, so the only kind of

calcium that I absorb

well is Calcium citrate, so I just keep a

bottle of it on my

dresser, and we usually both take it at nighttime.

We both notice our

un-fitful sleep when we forget.

>

> I heard a long time ago that taking calcium

before bed can help you

sleep, but also that that was an 'old wives tale'.

I don't know all

the ins and outs, just that it seems to work for

us.

> Maybe this will help someone else, too.

>

> Bless you all,

> Sue B

> in NJ

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  • 8 months later...

For sleep, you could try Melatonin, works like a charm for me.

Also 5-HTP at bedtime does work well.

And GABA works real nice, 750mg seems to be a good dose for sleep.

GABA will give a tingle in the fingers if you take too much.

>

> Hi bruce everyone I just found out that I take trazodone to help

> me sleep , and I found out that it lowers your white blood cells.

> And I do not know to why my doctor did not find out this before as

> it has been a long time know my white blood cells been low.

> Bruce you mention this before to check all my meds and but I am also

> woundering my AsT and ALT are high by about 5 points could this make

> any disorder I am just confuse as heck with all my other problems

> please guys any info is appreciated and I am heading to my doc to

> discuss this now thanks inadvance. Jack

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--- Hey patrick Thanks a lot I have tried melo before yes it does

make me to sleep but I can't backed up some one or some where said

that it affects your hormones and kind got scare as you know with

less T I don't wont to mess up what I have but also I was having

vivid dreams kind of or as I wake up I get confuse yet refreshed

so I don't know but Thanks.

In , " theta_2k " <pohare@p...> wrote:

>

> For sleep, you could try Melatonin, works like a charm for me.

> Also 5-HTP at bedtime does work well.

> And GABA works real nice, 750mg seems to be a good dose for sleep.

> GABA will give a tingle in the fingers if you take too much.

>

>

>

>

> >

> > Hi bruce everyone I just found out that I take trazodone to

help

> > me sleep , and I found out that it lowers your white blood

cells.

> > And I do not know to why my doctor did not find out this before

as

> > it has been a long time know my white blood cells been low.

> > Bruce you mention this before to check all my meds and but I am

also

> > woundering my AsT and ALT are high by about 5 points could this

make

> > any disorder I am just confuse as heck with all my other

problems

> > please guys any info is appreciated and I am heading to my doc

to

> > discuss this now thanks inadvance. Jack

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On Tue, 04 Jan 2005 17:21:11 -0000, you wrote:

>For sleep, you could try Melatonin, works like a charm for me.

>Also 5-HTP at bedtime does work well.

>And GABA works real nice, 750mg seems to be a good dose for sleep.

>GABA will give a tingle in the fingers if you take too much.

I'd steer away from melatonin with secondary Hypo-g issues. You're

messing with hormones and neuro transmitters which are already in a

mess. Shifting or unbalancing levels has effects as you should see

already with T and E levels.

I'd suggest something more sedative in nature. Valerium works well and

is not accentuated by alcohol like most. (It's a herb extract.)

Smells like hell. I recommend liquid with lemon in the mix. It comes

in capsules also.

- - - -

Just another albino black sheep

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---Hi Tetro

Thanks for your input men I knew I heard something about melotonin

and thanks for the information. But also I have tried vallerian root

with good results except for the high price so I think if you are

talking about valerian root I just might tried again thanks

albino....or retro is it okay thanks.

In , retrogrouch@c... wrote:

> On Tue, 04 Jan 2005 17:21:11 -0000, you wrote:

>

> >For sleep, you could try Melatonin, works like a charm for me.

> >Also 5-HTP at bedtime does work well.

> >And GABA works real nice, 750mg seems to be a good dose for sleep.

> >GABA will give a tingle in the fingers if you take too much.

>

>

> I'd steer away from melatonin with secondary Hypo-g issues. You're

> messing with hormones and neuro transmitters which are already in a

> mess. Shifting or unbalancing levels has effects as you should see

> already with T and E levels.

>

> I'd suggest something more sedative in nature. Valerium works well

and

> is not accentuated by alcohol like most. (It's a herb extract.)

> Smells like hell. I recommend liquid with lemon in the mix. It

comes

> in capsules also.

>

> - - - -

> Just another albino black sheep

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On Tue, 04 Jan 2005 21:12:48 -0000, you wrote:

>

>

>---Hi Tetro

> Thanks for your input men I knew I heard something about melotonin

>and thanks for the information. But also I have tried vallerian root

>with good results except for the high price so I think if you are

>talking about valerian root I just might tried again thanks

>albino....or retro is it okay thanks.

Here's the one I like.

http://www.tomsofmaine.com/toms/product.asp?dept%5Fid=320 & pf%5Fid=HB%2DSA

- - - -

Just another albino black sheep

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  • 5 months later...
Guest guest

Marie,

I was like that myself, my body got out of

wack from sleeping so darn much in the hospital. Took me a while to get back

into the swing of things too.

Tiffinee

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of mke4him@...

Sent: Thursday, June 09, 2005

10:05 PM

Joint Replacement

Subject:

Sleep Problems

Does anyone

here have problems sleeping? I am five weeks post op and even tylenol keeps me

awake at night, I toss and turn, could it be the coumadin? I don't know what it

is to sleep.

any help is

appreciated, thanks~!

Marie

total hip

replacement

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Guest guest

Marie: many people have problems for several months getting back into

their normal sleep patterns. You might need to ask you doc for a sleep

aide, on the order of ambien, to help you sleep. Are you still taking

pain pills? Are you sleeping during the day? Usually once you become

more active during the day, your natural sleep patterns return. You need

your rest to heal your body, so don't be afraid to call your doc and ask

about it.Sweet dreams!

Marilyn

mke4him@... wrote:

> /Does anyone here have problems sleeping? I am five weeks post op and

> even tylenol keeps me awake at night, I toss and turn, could it be the

> coumadin? I don't know what it is to sleep./

> /any help is appreciated, thanks~!/

> /Marie/

> /total hip replacement /

>

>

>

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Guest guest

Ask your doctor for 5 or 10 mg. Ambien. I've had good luck with it.

AFter my hip replacement I took it everynight for over 6 weeks and had

zero trouble stoppping after that.

> Does anyone here have problems sleeping? I am five weeks post op

and even

> tylenol keeps me awake at night, I toss and turn, could it be the

coumadin? I

> don't know what it is to sleep.

> any help is appreciated, thanks~!

> Marie

> total hip replacement

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  • 4 months later...

> I am also having huge sleeping problems with my 4 year old son. We

had him on Houston Enzymes and I actually took him off the enzymes

after a few months as it was just after this that his sleep was disturbed.

If you want to consider enzymes again, buy ones without

papain/bromelain, because those can cause sleep issues.

Phenol intolerance and yeast overgrowth are common causes of sleep issues

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

High doses of B vitamins can cause sleep issues. So can certain other

supplements.

Dana

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  • 9 months later...

Wish I could help but here it is 8:42 AM and I've not been to bed yet. Sigh.

I'm having some major sleep issues as well but mine isn't from meds or

anything. I was working nights. I'm a nightowl to begin with. Now I'm having

to go back to a 'normal' day thingy and it's not working very well. I wish

everyone else would go to nights as well. Maybe that would help. ;-)

The only helpful thing I can say is talk to your doctor. They might know

something that would help. And maybe a change in meds might help you a bit.

It might be that Ambien doesn't work the same for everyone.

Barbara

sleep problems

>

> Hi again,

>

> Does anyone have any suggestions to help regulate my sleep? There's a

> lot of things that frustrate me about my current situation, but the

> sleep thing is the one that's bothering me right this second.

>

> Basically I'm oversleeping (going to bed at a normal hour like 10 or

> 11 and then waking up at 3pm the next afternoon) and then staying up

> all that afternoon, night, and next day. I feel like I've tried every

> trick in the book to get to a normal sleep pattern. I have a scrip

> for Ambien and I take it at night, I have a bedtime routine, I avoid

> caffiene, I set my alarm for the same time each day (right now I sleep

> through it and don't even remember turning it off), when I'm up in the

> morning I take a walk to get the morning sunlight, etc etc. Anything

> that's helped y'all would be greatly appreciated, even if it sounds

> really weird. Actually, especially if you think it sounds weird.

> Because then chances are I haven't heard of it and tried it yet! :)

>

> Thanks in advance,

>

> Jen

>

>

>

>

>

>

>

>

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Have you tried Melatonin? My Doc. said it's OK to take with the Lex and it seems

to help. And, it's cheap cpmpared to the Ambien.

Jen <jenniferm32@...> wrote:

Hi again,

Does anyone have any suggestions to help regulate my sleep? There's a

lot of things that frustrate me about my current situation, but the

sleep thing is the one that's bothering me right this second.

Basically I'm oversleeping (going to bed at a normal hour like 10 or

11 and then waking up at 3pm the next afternoon) and then staying up

all that afternoon, night, and next day. I feel like I've tried every

trick in the book to get to a normal sleep pattern. I have a scrip

for Ambien and I take it at night, I have a bedtime routine, I avoid

caffiene, I set my alarm for the same time each day (right now I sleep

through it and don't even remember turning it off), when I'm up in the

morning I take a walk to get the morning sunlight, etc etc. Anything

that's helped y'all would be greatly appreciated, even if it sounds

really weird. Actually, especially if you think it sounds weird.

Because then chances are I haven't heard of it and tried it yet! :)

Thanks in advance,

Jen

---------------------------------

Get your email and more, right on the new .com

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Jen,

Has anyone suggested a sleep study for you? Sometimes it's hard to

find them unless you live in a Metropolitan area. Just wondering.

Amy

>

>

> Hi again,

>

> Does anyone have any suggestions to help regulate my sleep?

There's a

> lot of things that frustrate me about my current situation, but the

> sleep thing is the one that's bothering me right this second.

>

> Basically I'm oversleeping (going to bed at a normal hour like 10

or

> 11 and then waking up at 3pm the next afternoon) and then staying

up

> all that afternoon, night, and next day. I feel like I've tried

every

> trick in the book to get to a normal sleep pattern. I have a scrip

> for Ambien and I take it at night, I have a bedtime routine, I

avoid

> caffiene, I set my alarm for the same time each day (right now I

sleep

> through it and don't even remember turning it off), when I'm up in

the

> morning I take a walk to get the morning sunlight, etc etc.

Anything

> that's helped y'all would be greatly appreciated, even if it sounds

> really weird. Actually, especially if you think it sounds weird.

> Because then chances are I haven't heard of it and tried it yet! :)

>

> Thanks in advance,

>

> Jen

>

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  • 1 year later...
Guest guest

> Hello Bee,

>

> Just perusing some earlier messages re sleep problems and as above,

> you suggest taking cal/mag 1/2 hour before bedtime (which I have

> tried), or taking extra magnesium.

>

> My current dose of cal/mag is 250mg calcium citrate with 400mg

> magnesium. How much extra magnesium should/could I take?

==>Hi . The recommended doses are 300 mg of each twice a day. You

would take your 2nd dose at bedtime, even if you are taking more

magnesium than calcium. I don't believe you'll need extra magnesium.

Luv, Bee

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Guest guest

>

> Is heavy night sweats common while on Candida?

==>Hi there. Yes, night sweats are very common. They are mainly

caused by low adrenal functioning, which in turn is caused by candida.

My main article " How to Successfully Overcome Candida " explains what

you need to do to cure candida, and your adrenals will also normalize.

You should do dry skin brushing every day for your adrenals and liver,

and do coffee enemas as recommended in order to decongest your liver

and adrenals.

Also see the article " Adrenal Malfunction and How to Treat it " which is

in the " Treatments " Folder in our group's files (left menu).

Candida affects the functioning of many organs in the body because it

makes all of the body's cells go rigid/stiff. The key is to build up

your immune system so it can turn candida around, and then the

functioning of the entire body will be able to normalize, without all

of those candida toxins.

The best in health, Bee

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Guest guest

I have had heavy soaking night sweats before. They were scary because I

thought I had cancer, menopause, AIDS, etc... They were mainly with

other symptoms that are now gone. During this time I was having

sensitivities to everything. My heart would take off up to 165 and I

had burning in my lungs. It got so bad I had my 10 year sleep with me

to call 911 for me. I installed a CO2 detector because I thought for

sure I was being poisened at night. I was not. This is all gone. Not

all my problems are gone, but I am sure glad this one is.

Shelby

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Guest guest

It got so bad I had my 10 year sleep with me

> to call 911 for me. I installed a CO2 detector because I thought for

> sure I was being poisened at night. I was not. This is all gone. Not

> all my problems are gone, but I am sure glad this one is.

>

> Shelby

>

Hi Shelby,

I can sooo relate to this as I have become so fearful over the last few

years. Some of my symptoms have seemed to come out of nowhere. I

rarely spend any time alone these days or go anywhere alone for fear of

what might happen. This is not me. Not the me that used to be.

Hopefully, this stage will pass and I will become confident again. I'm

glad for you that you are doing better in this regard.

~Cathe

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Guest guest

Cathe, some people just don't understand that. Last summer before I

knew what was going on, I was scared to drive. My vision was going

blurry, I would become detached, I was not able to breath and getting

dizzy. When I had to drive I hugged the right side and went as slow as

I could get away with in case I crashed. It was insane. I did not go

many places. I did go to the Okefenokee (sp) swamp in Florida.

Afterwards I had to go the ER because I was twitching, going numb and I

could not breathe. They told me I got bit by a bug. Turns out that I

have a peanut allergy that I did not realize and the candida had made

me so sensitive to them. I had been eating peanuts at the swamp. I also

remember going into some new fifth wheel campers and getting dizzy, my

eyes started burning and pouring. My heart started racing and I felt

like I was going to pass out. I also had become so sensitive to

chemicals. I had to sell my new truck because I could not drive it.

This is not as bad now either, although I still can't have peanuts. I

have spent so much time being scared. I am not well but I am not scared

like that anymore. I have a new understanding of people who don't want

to leave home because of an illness or anxiety. People really thought I

was losing my mind and I thought was losing my mind and my body.

Shelby

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  • 2 months later...
Guest guest

Sherry, for me the issue is pain. Like you I used to wake up after an hour or

two, but when I told my rheumy she put me on hydrocodone for the night. While

the hydrocodone is working I sleep, but when it wears off (after about six

hours) I wake up. I've taken to bringing it to bed with me and taking it right

before I fall asleep rather than with all the other night meds, which I take

before I lay down to read.

Unlike you I don't fall asleep easily. I have a prescription for Ambien but I

don't like to take it regularly so I limit it to nights when I =must= be awake

early. On some other nights I use over-the-counter melatonin lozenges.

Melatonin is one of the hormones that regulates sleep cycles, but again I don't

like to take those very often.

Both Ambien and melatonin help one =get= to sleep but don't help people =keep=

sleeping, so neither of these would be of much help to you, as you don't have a

problem with the former. To address this issue Aventis, the company that makes

Ambien, has come out with a time-release formula they claim will help people

not only get to sleep but stay that way, Ambien CR.

Personally I am not interested in the product because I'm afraid of not being

able to wake up in the case of emergencies or the like. The reality is that

Aventis is unlikely to come out with a product that would force people to sleep

through emergencies, but I'm not going to test it. Theoretically Merck would

not produce an NSAID that increased the likelihood of heart attacks, yet many

of us took Vioxx for years. So I'm going to stay away from Ambien CR, but if

you think it's what you need you should speak to your doctor about it.

Finally, sleeping positions are likely a problem for many of us. In addition to

the arthritis I have bursitis in my shoulder and hip, an impingement in my

right hip, and three herniated vertebrae in my lumbar spine. All that probably

sounds more fun than it is, and I suspect many of us have more than one physical

problem that inhibits good sleeping patterns. Anyway, no particular sleep

position works for me, so I wake up for very short periods to shift about, then

I'm back to sleep again (or so my wife tells me). I don't know what that does

for my REM sleep, but there you go.

RA

North Jersey

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Guest guest

Ambien (now available in generic form) works very well but if you take it every

night, its effectiveness eventually wears off. When I first started taking it

(0.5 mg tablets), my doctor said no more than 3 times per week; but I found

that it not only helped me sleep on the nights I took it but for some weird

reason, it helped on the other nights too. My doctor said it was because my

" biorhythms " were getting in sync. Over the years, its effectiveness wore off

even after I went up to .10 mg; but I have not found anything else that works as

well - until I recently went on Lyrica for fibromyalgia. I don't even know if I

have fibro but Lyrica has given me the best sleep I've had in some years - a

good 5 to 6 hours of un-interrupted sleep every night, at a minimum. I've only

started it recently so I don't know how long it will last but for now it's

great.

FYI: my rheumy, first time I saw her, said, " Ambien's OK but would you like

something better? " I, of course, replied yes so she prescribed 1-2 clonazepam,

0.5 mg tablets per night. I've had mixed success with them - sometimes they

work, sometimes not.

Not getting enough sleep can be caused by a whole host of problems: I've always

blamed mine on hormones. However, my doctor has suggested that it might be

pain, though I'm not even consciously aware of it. I guess we get so used to

living with it at some level that we sometimes don't even notice that it's there

at night - possibly keeping us awake.

Joanna Hoelscher

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