Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I personally recommend Valerian. Art -- > > what do ppl here with sleep problems on ldn advise? melatonin? sleep > meds? this is my 2nd attempt at taking ldn. i had to stop after 2 weeks > the 1st attempt due to some bad symptoms which i hope i've resolved. am > now taking 1/4 dose at 9 pm and last 2 nites have not gone into deep > sleep at all even on this dose. i'd like to try it at nite for 2 weeks > to see if this resolves. even at 1.15 mg it still is noticeably helping > the RA. amazing but man i miss sleep. am not a good sleeper to begin > with since i got sick. i have adrenal fatigue i know. > > thanks > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Good. I am already taking it on occasions. I always have a bottle at home. Vera Velmerig Cincinnati, Ohio/USAFrom: Art <rtee54@...>Subject: [low dose naltrexone] Re: sleep problemslow dose naltrexone Date: Thursday, June 19, 2008, 7:32 PM I personally recommend Valerian. Art -- > > what do ppl here with sleep problems on ldn advise? melatonin? sleep > meds? this is my 2nd attempt at taking ldn. i had to stop after 2 weeks > the 1st attempt due to some bad symptoms which i hope i've resolved. am > now taking 1/4 dose at 9 pm and last 2 nites have not gone into deep > sleep at all even on this dose. i'd like to try it at nite for 2 weeks > to see if this resolves. even at 1.15 mg it still is noticeably helping > the RA. amazing but man i miss sleep. am not a good sleeper to begin > with since i got sick. i have adrenal fatigue i know. > > thanks > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi , I also had sleep issues with taking LDN -- at night....which is why I switched to day-time dosing. I take my LDN between 8-9am every day now and I am sleeping just fine now. I have autoimmune thyroid disease (Hashi's) -- and probably because thyroid folk have metabolic issues...we just seem to do better with day time dosing. The MS folk here seem to have a different experience than us thyroid folk and do better with night-time dosing. The first 6wks I took LDN at night I became so sleep deprived that I felt dangerous to drive. In fact I took an adrenal (saliva) test right at the 6wk mark of LDN night-time dosing. My test results came back where at every test time (which is 4 times throughout the day) I was EXTREMELY low in cortisol. So if you already have adrenal fatigue I know your adrenals must be even worse shape now that you're not getting the sleep you need. The day after that first adrenal test, I switched to day-time LDN dosing and then had my adrenals retested again 6wks later. All my cortisol levels tested well within normal limits -- probably not optimal, but certainly NOT anything like they were with the previous test. So...I guess you could try LDN day-time dosing and see how you do. ?? I may at some later date try the night-time dosing again...just to see if it's still a problem for me. I'm doing so well now, I don't want to mess up a good thing so I'll wait till later on in the year to try that experiment. Good luck... Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Go to www.ldninfo.org the LDN Website Because of the rhythms of the body's production of master hormones, LDN is best taken between 9pm and 3am. Most patients take it at bedtime. Notable exceptions: People who have multiple sclerosis that has led to muscle spasms are advised to use only 3mg daily and to maintain that dosage. For intial dosage of LDN in those patients who have Hashimoto¢s thyroiditis with hypothyroidism and who are taking thyroid hormone replacement medication, please read Cautionary Warnings, below. The therapeutic dosage range for LDN is from 1.75mg to 4.5mg every night. Dosages below this range are likely to have no effect at all, and dosages above this range are likely to block endorphins for too long a period of time and interfere with its effectiveness. Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 9 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: sleep problems Hi ,I also had sleep issues with taking LDN -- at night....which is why Iswitched to day-time dosing. I take my LDN between 8-9am every daynow and I am sleeping just fine now. I have autoimmune thyroid disease (Hashi's) -- and probably becausethyroid folk have metabolic issues...we just seem to do better withday time dosing. The MS folk here seem to have a different experiencethan us thyroid folk and do better with night-time dosing. The first 6wks I took LDN at night I became so sleep deprived that Ifelt dangerous to drive. In fact I took an adrenal (saliva) testright at the 6wk mark of LDN night-time dosing. My test results cameback where at every test time (which is 4 times throughout the day) Iwas EXTREMELY low in cortisol. So if you already have adrenal fatigueI know your adrenals must be even worse shape now that you're notgetting the sleep you need. The day after that first adrenal test, I switched to day-time LDNdosing and then had my adrenals retested again 6wks later. All mycortisol levels tested well within normal limits -- probably notoptimal, but certainly NOT anything like they were with the previoustest. So...I guess you could try LDN day-time dosing and see how you do. ??I may at some later date try the night-time dosing again...just tosee if it's still a problem for me. I'm doing so well now, I don'twant to mess up a good thing so I'll wait till later on in the year totry that experiment. Good luck...Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi Jaanz2, Your post was most enlightning. I have been on LDN for about 3-4 months and my sleep has been horrendous. I wake up at 3:00 am and can hardly fall asleep and stay asleep thereafter. I too have thyroid issues (not sure if I have hashi's or not, but am hypo). I am going to give the morning dose a try as I cannot go any longer with this lack of sleep. Other than the sleep issue, LDN has worked marvelously on my lupus and I have been in remission since getting leveled off on the LDN. I will never stop taking it, but will experiment to get the best results for my body. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 hi jann thanks for the info. switched to day dosing today. took melat last nite and no ldn and did sleep better for sure. hope they daytime dosing works. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Hi , I had bad sleep problems at first and cut back to 1.5 for as long as it took for me to feel like I was sleeping well. I tried 5htp (got sleep but other symptoms too which I did not like), melatonin (didn’t work for me and made me groggy), and finally just decided to stick it out with nothing. One thing I did, though, was stay up very late and take it right before getting into bed. Even now, I often take it at 1am because that’s how my internal clock works. At that hour I can fall asleep easily because I’m so tired already, and then if the LDN wakes me up at 3am, I fall back asleep pretty quickly. Some people need to adjust the time they take it. Earlier in the evening may be wrong for you. I’ve seen some people here post that they are taking it during the day. That would be another thing to try. Even if you didn’t get good results with your RA during the day, your body would be adjusting to the LDN and you would still be able to sleep at night. Then, after a while, once your body has gotten used to it, try taking it at night. Judy sleep problems Posted by: " Sauve " moniquesauve@... moniquesauve Thu Jun 19, 2008 12:24 pm (PDT) what do ppl here with sleep problems on ldn advise? melatonin? sleep meds? this is my 2nd attempt at taking ldn. i had to stop after 2 weeks the 1st attempt due to some bad symptoms which i hope i've resolved. am now taking 1/4 dose at 9 pm and last 2 nites have not gone into deep sleep at all even on this dose. i'd like to try it at nite for 2 weeks to see if this resolves. even at 1.15 mg it still is noticeably helping the RA. amazing but man i miss sleep. am not a good sleeper to begin with since i got sick. i have adrenal fatigue i know. thanks monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 Lyme AidYes, Provigil is a good option for increasing alertness, but it isn't always better than adderall & the other stimulants. It's approved for narcolepsy. Many prescription plans will approve it only for that diagnosis or if you have been unsuccessful with the other drugs. But, it doesn't always work better. Many people with narcolepsy still have better luck with adderall. It is a very individual thing. If sleep problems are an ongoing issue, consider a sleep study & diagnosis. Unlike Lyme, insurance and 'regular' doctors will recognize the need for that. Lyme can look like narcolepsy or actually trigger narcolepsy... it is a disease that has a genetic component & needs something to trigger it. Improving your sleep is key to fighting the Lyme, so being treated for a sleep disorder (even if the doctor doesn't see it as a Lyme issue) can make a big difference in daily functioning & recovery. . If you visit a sleep specialist, I'd encourage you to find one that has some experience beyond classic apnea. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Hi - answers between your questions: thanks for answering my plea ! What is '2 stage' melatonin please and did ya get it from your gp or privately ? V: I get it from iherb.com http://www.iherb.com/ProductDetails.aspx?pid=702 Also,is it a natural product, are there any side effects I should be aware of. V: Well it is something your body does produce itself, I just give it a little help. I will get some mimosa tea, my nutritionist mentioned it too. V: I get it from http://www.paris-lotus.com/index.php?page=search & langue_id=1 & mot=mimosa & x=16 & y=9 If you find a good source closer to hime, perhaps you can let me know. Do you know what it was that was causing your sleep probs.... was it cortisol ? V: I am on hc. I guess it was probably stress reasons stopping me sleeping without help.Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi Did you ever do the 24 hour salivary adrenal profile. If you did, I bet you had high cortisol at night. Your cortisol should be at its lowest in the reference range at night to enable you to sleep peacefully. Please read also Dr Lam's web site on adrenals and note his recommendations that you need to be in bed at 10.00p.m. and the reasons why. http://adrenalfatigue.wordpress.com/2008/05/07/adrenal-fatigue-by-dr-michael-lam/ I find all of his web site quite fascinating. luv - Sheila To answer your question Mo, basically I could fall asleep easily by 9.30pm, but because of my son,who is NEVER asleep before 10 - 11pm, I never go to bed before then.... and at about 10pm I can literally feel a big surge of " ok we need to keep her awake " flowing through me. I go to bed about 11.30-midnight and fall immediately off to sleep and then DING-DING it's like a boxing ring bell wakes me up at 2.30-3.00am and that's it, Messages | Files | Photos | Polls TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. MARKETPLACE The Average American's IQ is 98! How do you rank? Take the official IQ Quiz at Quizyou.net. From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity · 20 New Members · 11 New Files Visit Your Group Dog Lovers Group Connect and share with dog owners like you Stay healthy and discover other people who can help. Group Charity City Year Young people who change the world .. Error! Filename not specified. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.27/2021 - Release Date: 03/24/09 16:00:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi julia, Thanks, but I have got loads at the moment still. If you find it cheaper can you get the name of the shop & whether or not they have a website though please. Val I'm pretty sure I saw some mimosa tea when I was last in Brighton..... I have to go there again this Saturday so I'll check it out and let you know (if it's cheaper than you pay now, I can grab you some and send it if you like).julia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I'm asking for a friend who is taking LDN . . . He is having difficulty sleeping when taking at 9:00 P.M. Could he take it in the morning for a few weeks until his body adjusts to it, and then move it gradually back to the evening? Would this work? By the time he moved it back to evening, maybe it wouldn't bother his sleep then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 he can do that ,but best is to take melatonine or other supplement like magnesium,5HTP that will help him to sleep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Along with taking melatonin, he might also try moving the timing later, closer to bedtime. I find I have less sleep disturbance when I take my LDN closer to 11 p.m. or midnite, than when I tried taking it at 9 p.m. Best, Connie Star Kohler wrote: >>I'm asking for a friend who is taking LDN . . . >>He is having difficulty sleeping when taking at 9:00 P.M. Could he take it in the morning for a few weeks until his body adjusts to it, and then move it gradually back to the evening? Would this work? By the time he moved it back to evening, maybe it wouldn't bother his sleep then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I find the same thing. I now take my LDN just before going to bed - rarely after 11 pm but whenever. It does seem to make a difference. Presumably I'm asleep before it kicks in.I tried melatonine but it made things worse for me - and pn the pot of it (Source Naturel) I have it says not to take it if you have auto immune though apparently it works for many people.MargaretFrom: Connie <chillyconconnie@...>low dose naltrexone Sent: Fri, February 19, 2010 5:51:25 PMSubject: [low dose naltrexone] Re: Sleep problems Along with taking melatonin, he might also try moving the timing later, closer to bedtime. I find I have less sleep disturbance when I take my LDN closer to 11 p.m. or midnite, than when I tried taking it at 9 p.m. Best, Connie Star Kohler wrote: >>I'm asking for a friend who is taking LDN . . . >>He is having difficulty sleeping when taking at 9:00 P.M. Could he take it in the morning for a few weeks until his body adjusts to it, and then move it gradually back to the evening? Would this work? By the time he moved it back to evening, maybe it wouldn't bother his sleep then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I realize the ideal time to take LDN is 10 p.m. or later, and many of you (including you, Connie) have mentioned taking your LDN very late at night. Do you actually go to bed this late, or do you set an alarm and then get up and take it? We go to bed early -- by 9 p.m., and are up at 4:30 a.m.. Do you feel the later dosing (setting an alarm for 10 or 11 p.m.) is important? Thanks for any advice.WisconsinOn 19 February 2010 10:51, Connie <chillyconconnie@...> wrote:  Along with taking melatonin, he might also try moving the timing later, closer to bedtime. I find I have less sleep disturbance when I take my LDN closer to 11 p.m. or midnite, than when I tried taking it at 9 p.m. Best, Connie Star Kohler wrote: >>I'm asking for a friend who is taking LDN . . . >>He is having difficulty sleeping when taking at 9:00 P.M. Could he take it in the morning for a few weeks until his body adjusts to it, and then move it gradually back to the evening? Would this work? By the time he moved it back to evening, maybe it wouldn't bother his sleep then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Some melatonin products include Vitamin B-6. The B-6 component can stimulate dreaming, so if taken with LDN which also may do the same for you, together they may be cause of sleep disturbance. Margaret Schooling wrote: > > I find the same thing. I now take my LDN just before going to bed - > rarely after 11 pm but whenever. It does seem to make a difference. > Presumably I'm asleep before it kicks in. > > I tried melatonine but it made things worse for me - and pn the pot of > it (Source Naturel) I have it says not to take it if you have auto > immune though apparently it works for many people. > Margaret > ------------------------------------------------------------------------ > *From:* Connie <chillyconconnie@...> > *To:* low dose naltrexone > *Sent:* Fri, February 19, 2010 5:51:25 PM > *Subject:* [low dose naltrexone] Re: Sleep problems > > > > Along with taking melatonin, he might also try moving the timing > later, closer to bedtime. I find I have less sleep disturbance when I > take my LDN closer to 11 p.m. or midnite, than when I tried taking it > at 9 p.m. > > Best, > > Connie > > Star Kohler wrote: > > >>I'm asking for a friend who is taking LDN . . . > > >>He is having difficulty sleeping when taking at 9:00 P.M. Could he > take it in the morning for a few weeks until his body adjusts to it, > and then move it gradually back to the evening? Would this work? By > the time he moved it back to evening, maybe it wouldn't bother his > sleep then? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 The only other ingredient in this one is calcium. And I've never been troubled by dreams on LDN - good or bad - they're no different to what they were in the past. The major culprit in my case is restless legs.MargaretFrom: Sturr <esturr@...>Margaret Schooling <mschooling@...>Cc: low dose naltrexone Sent: Fri, February 19, 2010 6:45:31 PMSubject: Re: [low dose naltrexone] Re: Sleep problems Some melatonin products include Vitamin B-6. The B-6 componentcan stimulate dreaming, so if taken with LDN which also maydo the same for you, together they may be cause of sleep disturbance.Margaret Schooling wrote:> I find the same thing. I now take my LDN just before going to bed - rarely after 11 pm but whenever. It does seem to make a difference. Presumably I'm asleep before it kicks in.> > I tried melatonine but it made things worse for me - and pn the pot of it (Source Naturel) I have it says not to take it if you have auto immune though apparently it works for many people.> Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 Hi everyone, My son just got his helmet last Tuesday and is fine with it during the day but then screams when we try to lay him down when he sleeps. This is a baby who has always slept great and never cries! Did anyone else out there have any sleep problems with the helmet. I feel so bad and I just don't know what to do for him. We broke down the last two nights and took it off. I know I shouldn't do that but he wouldn't stop crying. We go in today for a fitting and I'm hoping that its just not fitting right. Any similar problems or suggestions for a tired mom and little boy. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Yes, and the first step towards finding the answer is to get the 24 hour salivary adrenal profile done Gill to check where your levels of cortisol and DHEA lie at four specific times during the day. Luv - Sheila Does anyone have any advice re getting a nights sleep? No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1152 / Virus Database: 424/3222 - Release Date: 10/27/10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 have you heard of, or tried, 5-htp for sleep problems? Chris Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.