Re: DOC band buddy in Chicago

[Guest guest]

My sisters nephew will be going to that location to get his band but

not yet b/c he is in the hospital. They don't live in chicago though,

about an hour (I think), in wisconsin

On 5/12/10, anaraluca <anaraluca@...> wrote:

> Hi all,

>

> First off, I just want to say how happy I am that this group exists! It puts

> our minds at ease that there are other people out there fighting

> pediatricians who don't take you seriously when you mention plagio, and that

> helmets do work.

>

> We're having our first appointment for our 4-month daughter Ella with

> Cranial Tech in Glenview, Chicago on 5/13. I'm just wondering if there's

> anybody else in this group who lives in Chicago and has started the band

> recently (or will start soon). We would love to connect with others who are

> going through the same situation and share thoughts, experiences, etc(our

> story is below).

>

> Thank you,

> Ana

>

> Our story

>

> Ella (4.5 m.o.) has developed plagio on the right side of her head since she

> was 2 weeks old. She really favored sleeping on her right side but since we

> had no idea what could happen, we let her sleep that way.

>

> At the two-week check up the pediatrician noticed the flat spot, but said it

> would correct with tummy time, and he also said he had never recommended

> helmets to any of his patients. So we went home assured that things would

> get better. Fast forward a few weeks and we started to get really concerned

> about the flat spot - it was getting worse. She was favoring the right side

> more than ever, she could barely turn her head to the left.

>

> At the two month check up, the pediatrician again reassured us that she was

> fine although we noticed that the situation was getting much worse with each

> passing week. Solution? Lots of tummy time as if 15 minute a day on her

> tummy (Ella doesn't really like being on her tummy, despite our best efforts

> to keep her interested) would balance off 15 hours of sleep on her right

> side. We asked the dr. if Ella had torticollis but she said she didn't.

>

> A few weeks later were getting very anxious and decided to see a pediatric

> neurosurgeon. He said the plagio was mild but noticed she had torticollis

> albeit mild. So he referred us to a physical therapist who has helped Ella

> tremendously. In 5 or so weeks, she's gained almost 100% of the neck muscle

> strength which allows her to keep her head very steady and we can keep her

> in a Baby Bjorn carrier a few hours a day to take some of the pressure on

> her head.

>

> Despite making great strides at PT, her plagio improved very, very little,

> so at a recent follow up visit with the neurosurgeon he recommended that we

> get the helmet. Coincidentally, she had her 4-month shots the next day and

> we mentioned our decision to the dr. who went from being cheerful to being

> very defensive. He said he was against the bands and that heads round up

> (the usual story). What really upset us was the fact that he, AGAIN!, did

> not take our concerns seriously. " Her hair will grow and she'll never

> notice, " he said. We were just flabbergasted - how can a pediatrician,

> presumably concerned with the well being of a child (both physical and

> psychological), say such a ridiculous thing?

>

> Anyways, we're having our first appointment at Cranial Tech on 5/13 and

> we'll see how that goes. I just wanted to vent our frustration which, all to

> often, seems to be the story of thousands of concerned parents.

>

>

--

Sent from my mobile device

-mommy to Emma, Becca, ,

, , and baby girl no name (yeah I know, nothing new, does

ever pick a name in a timely manner?) July 2010