Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Losing weight was no problem because the pain caused the perfect aversion therepy. More than 5 grams of fat in a sitting or more than 15 grams of fat for the day caused horrible pain and a risk of an accute attack. After the whipple is a constant state of bulimia. Eat more than 1/2 a cup in volume of anything, it comes right back up. So, no credit goes to my strong diet will power cause I would love to feel that stuffed and sated feeling again. Just isn't going to happen. It sounds trite to say try and avoid depression. We all sure get hit with it. I have found the " Fake it till ya make it " mental state really helps. I just know depression is fattening for most folks. Try not to get mad at your situation. It sucks for sure, but it is here, and for most of us, it is not going away. It sure was easier to do this on 6 ES vicodins a day!!! My best friend is so darn sick with cancer right now that I feel like the lucky one. " I was upset about having no shoes, until I met the man who had no feet. " Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 - my dear - I'm glad to know that your Bishop and friends will be with you this evening. You definately will benefit from their presence. Please do not lose sight of the wonderful job you are doing. You are taking such good care of Dasia. It's okay to cry. It is incredibly frustrating dealing with these weight issues for our children. It can be incredibly exhausting. The reason you are so tired is because you are such a caring mother and only want the best for your child. I'm probably quoting someone who recently told me that - but, it makes a lot of sense and I understand more now that we grieve and become sad because we want only the best for our children and sometimes it just does not seem possible. Dasia, sometimes when life just seems to be too difficult to manage - we need a little support from our friends. You have us here. I'm glad you feel comfortable enough to reach out and discuss your feelings. The benefit for you to do that too is that it will help you to sort out some of your concerns and fears. When I'm feeling down, the first thing I do is contact a friend. Sometimes, it's just enough to get me going into that place of comfort where I can start to see things in a better light. When it isn't enough - I remind myself that I have to take care of ME first - before EVERYONE else before I'm going to get better. I don't mean forever. I mean a couple hours one day, a couple hours another - and so on. Sometimes, when I'm lucky - I might even get a whole day or a weekend. But, usually, I have to start out small with everything going on in our lives. You really need to find time to do something positive and uplifting for yourself. Dasia will be fine for those few hours. Maybe it's when she is taking a nap. Maybe it's before she wakes up - you can set your alarm a little earlier that morning. Make yourself get out of bed. Have a nice warm cup of your favorite tea or coffee. Take a bath. Read a few pages of a " positive " novel. Paint a christmas ornament. Write a letter to a good friend and share something positive with her. Anything positive will do. Do this repetatively for a few days and see how you feel. Sometimes, just forcing ourselves to be more " upbeat " helps us get out of that sadness that encumbers our whole being and then we are able to use that positive mental energy to fight the difficult feelings that we were unable to face initially. I have also found that taking my prenatal vitamins continually has really helped a lot. When I forget to take one - I notice I am more exhausted. If you have access to a good vitamin - this may help your spirits as well and help ease your tiredness. Continue what you are doing, meeting with friends and church family members, do something positive for yourself for a few days and let us know how you are doing - please. I hope you are okay with my comments. I so know what it's like to be sad, frustrated, and tired. It's not very much fun. As far as Dasia is concerned. I would continue to discuss with the nutritionists what their thoughts are and what they plan to do to help her through the situation. I know for my son Ian, sometimes there is not much I can do - but, wade through the tough times until I can finally get him to eat and gain weight. Continue to read the posts - there is a wealth of information here. You will do just fine. You are a wonderful person and fantastic mom. Don't doubt that for a minute. Hugs to you. I'll be traveling for the next three days so I will not be able to check on you until Monday. My best to you and I will be thinking of you lot's. Promise. - H > > Hi Everyone, > I haven't been on the computer much lately. I've been so depressed, and it's so exhausting to feel this way, I just wish I could sleep it all away. Dasia is constantly sick ever since it got cold about 2 months ago. Then, the last 2 out of 3 nutr. visits she lost 5 ounces each time, she's weighed every 2 weeks. It doesn't seem like that much, why am I falling apart over it? Today was one of those visits, and I haven't been able to stop crying. Some of my friends from church and our Bishop will be here tonight to help give support. My husband is out of town, and through all this, I'm just barely hanging on by a thread. Her nutr. said they probably wouldn't recommend a feeding tube since she has only lost weight in the winter months when she gets sick a lot. The rest of the time, I had been dealing with plateaus in her weight though, then I thought things were turning around since during this summer she gained about a pound. It's such a confusing battle, and I know everyone's > situation is unique, and it's really up to me to ask for a tube or not. I'm just lacking strength right now, thanks for being here, and for listening. I'm usually good at putting on a smiling face through whatever hard times hit, I just feel like I can't deal with this, especially without my husband, why now? > > Mom to Dasia > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 H - Thanks for your kind reply. I'm starting to feel better, it's almost time to call my husband, that always helps too. He's 2 hours behind our time, and 8:30 is SO long to wait on some days. I think sometimes I mask my feelings and don't grieve when I should, and it all builds up, causing a meltdown. I think it may be my minds twisted way of surviving by going into denial. I just can't handle the thought of having a child who isn't thriving. But once again we'll somehow get through this MAD season! advocate22003 wrote: - my dear - I'm glad to know that your Bishop and friends will be with you this evening. You definately will benefit from their presence. Please do not lose sight of the wonderful job you are doing. You are taking such good care of Dasia. It's okay to cry. It is incredibly frustrating dealing with these weight issues for our children. It can be incredibly exhausting. The reason you are so tired is because you are such a caring mother and only want the best for your child. I'm probably quoting someone who recently told me that - but, it makes a lot of sense and I understand more now that we grieve and become sad because we want only the best for our children and sometimes it just does not seem possible. Dasia, sometimes when life just seems to be too difficult to manage - we need a little support from our friends. You have us here. I'm glad you feel comfortable enough to reach out and discuss your feelings. The benefit for you to do that too is that it will help you to sort out some of your concerns and fears. When I'm feeling down, the first thing I do is contact a friend. Sometimes, it's just enough to get me going into that place of comfort where I can start to see things in a better light. When it isn't enough - I remind myself that I have to take care of ME first - before EVERYONE else before I'm going to get better. I don't mean forever. I mean a couple hours one day, a couple hours another - and so on. Sometimes, when I'm lucky - I might even get a whole day or a weekend. But, usually, I have to start out small with everything going on in our lives. You really need to find time to do something positive and uplifting for yourself. Dasia will be fine for those few hours. Maybe it's when she is taking a nap. Maybe it's before she wakes up - you can set your alarm a little earlier that morning. Make yourself get out of bed. Have a nice warm cup of your favorite tea or coffee. Take a bath. Read a few pages of a " positive " novel. Paint a christmas ornament. Write a letter to a good friend and share something positive with her. Anything positive will do. Do this repetatively for a few days and see how you feel. Sometimes, just forcing ourselves to be more " upbeat " helps us get out of that sadness that encumbers our whole being and then we are able to use that positive mental energy to fight the difficult feelings that we were unable to face initially. I have also found that taking my prenatal vitamins continually has really helped a lot. When I forget to take one - I notice I am more exhausted. If you have access to a good vitamin - this may help your spirits as well and help ease your tiredness. Continue what you are doing, meeting with friends and church family members, do something positive for yourself for a few days and let us know how you are doing - please. I hope you are okay with my comments. I so know what it's like to be sad, frustrated, and tired. It's not very much fun. As far as Dasia is concerned. I would continue to discuss with the nutritionists what their thoughts are and what they plan to do to help her through the situation. I know for my son Ian, sometimes there is not much I can do - but, wade through the tough times until I can finally get him to eat and gain weight. Continue to read the posts - there is a wealth of information here. You will do just fine. You are a wonderful person and fantastic mom. Don't doubt that for a minute. Hugs to you. I'll be traveling for the next three days so I will not be able to check on you until Monday. My best to you and I will be thinking of you lot's. Promise. - H > > Hi Everyone, > I haven't been on the computer much lately. I've been so depressed, and it's so exhausting to feel this way, I just wish I could sleep it all away. Dasia is constantly sick ever since it got cold about 2 months ago. Then, the last 2 out of 3 nutr. visits she lost 5 ounces each time, she's weighed every 2 weeks. It doesn't seem like that much, why am I falling apart over it? Today was one of those visits, and I haven't been able to stop crying. Some of my friends from church and our Bishop will be here tonight to help give support. My husband is out of town, and through all this, I'm just barely hanging on by a thread. Her nutr. said they probably wouldn't recommend a feeding tube since she has only lost weight in the winter months when she gets sick a lot. The rest of the time, I had been dealing with plateaus in her weight though, then I thought things were turning around since during this summer she gained about a pound. It's such a confusing battle, and I know everyone's > situation is unique, and it's really up to me to ask for a tube or not. I'm just lacking strength right now, thanks for being here, and for listening. I'm usually good at putting on a smiling face through whatever hard times hit, I just feel like I can't deal with this, especially without my husband, why now? > > Mom to Dasia > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I know EXACTLY where you are coming from. gets weighed frequently, too, and just this past week he had also lost. And, this isn't the first time. I have been where you are. I cry and get upset and wonder what I am doing wrong? But, it isn't what you are or aren't doing. So, don't blame yourself. If Dasia is anything like , there will be good weigh-ins and bad ones. I know you are worried though. Just know that you are doing a great job. I can imagine how hard it is when your husband is away, too. Hopefully you had a great phone conversation and he comforted you and you feel better now. The winter months are so hard because our kids are sick so much. But, remember how well she did over the summer. As long as she is not hypoglycemic and spilling ketones, she will be fine. I know it is hard enough to get them to eat when they AREN'T sick, let alone trying to get something in when they are. So many of us battle this, and (H) is struggling with this for her little boy, Ian, right now too. So, know that you aren't alone in all of this. Did I see where you were thinking of seeing Dr. H? She would be a great one to help you out in this situation. I hope you have a better day today! Jodi R. > > Hi Everyone, > I haven't been on the computer much lately. I've been so depressed, and it's so exhausting to feel this way, I just wish I could sleep it all away. Dasia is constantly sick ever since it got cold about 2 months ago. Then, the last 2 out of 3 nutr. visits she lost 5 ounces each time, she's weighed every 2 weeks. It doesn't seem like that much, why am I falling apart over it? Today was one of those visits, and I haven't been able to stop crying. Some of my friends from church and our Bishop will be here tonight to help give support. My husband is out of town, and through all this, I'm just barely hanging on by a thread. Her nutr. said they probably wouldn't recommend a feeding tube since she has only lost weight in the winter months when she gets sick a lot. The rest of the time, I had been dealing with plateaus in her weight though, then I thought things were turning around since during this summer she gained about a pound. It's such a confusing battle, and I know everyone's > situation is unique, and it's really up to me to ask for a tube or not. I'm just lacking strength right now, thanks for being here, and for listening. I'm usually good at putting on a smiling face through whatever hard times hit, I just feel like I can't deal with this, especially without my husband, why now? > > Mom to Dasia > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.