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Re: UPDATE: Re-started Intro - Vomiting, Runs & Mucus?

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Ok, sorry for the delay in getting back but we have had this HORRIBLE

virus (maybe rotavirus) run through our family the past 8 days that

has been pure HELL! So, YES, it was a virus (maybe some die-off too)

but it had my husband and young daughter vomiting and having

horrible " blow-out " diarrhea right around Christmas (Merry

Christmas!). Ugh, what a horrible holiday. :-( Everyone got better by

yesterday except for Ben, whose virus turned into a cold/flu with

this new horrible cough when he is in bed at night.

While he was so horribly sick and vomiting, I couldn't give him meat

patties, or any other intro food, so we gave in after day 5 with no

food at all and gave him rice crackers and bananas. He was screaming

for food, and I was not going to starve my poor, sick child. The

intro was not going well anyway, as he won't eat meats anymore (got

tired of them from before), won't touch cooked fruit (texture

issues), won't eat jello (texture issues), won't eat hot liquids

(soups, etc), can't digest nuts in ANY form, can't have dairy (or

goat's milk...we tried), or ANY eggs, and " crazy " stimming behavior

and violent tantrums with bananas apparently. He now " cries " for

bananas, a really BAD sign. His behavior has been very " on edge " and

more tantrums since the bananas and rice were added in 3 days ago.

HOWEVER, there has been MAJOR improvement in those same three days,

especially last night, when he actually ASKED for food! Several

different things, but directly to me. So, I am even more confused.

After our initial intro diet a month ago, we got formed stool on day

3 - day 5, then never again. He absolutely cannot digest ANYTHING

besides the broiled meat patties. So, how on earth am I going to

continue this diet? I know the diet has been doing great things for

him, when he would eat the meat patties, and even during the

continued diarhea (the rest of the first month), but if we are going

to have the diarhea regardless, then why do the diet? I mean really,

WHY? If the gut is not digesting ANYTHING, then why give all the

nuts, etc. that he can't digest when he could be doing the same thing

with say, tapioca flour, and be much happier? UGH!!!

I am just SO frustrated, with no help locally. I can't seem to find a

dietician that knows the diet here that is local, so I am ready to

give up. I work so hard for this diet, and he still has the horrible

stools and gut pains. We are waitig to get back the tests that will

tell us which antifungal would be the best, as well as antivirals, so

we plan to start those as soon as we have the information we need.

And maybe with the horrible shape that Ben's gut is in, that those

will be the answer to helping this diet work better for him. Does

anyone have any thoughts, suggestions?

Thanks -

(mom to Ben, 3 1/2 ASD)

>

> This *could* be die-off.... or a virus.... or both (lucky you! ).

Does he have any other symptoms.... fever, etc?

>

> The stools today sound like you are getting yeast die-off. That's

what quite a few parents have reported seeing.

>

> Are you doing epsom salts baths? Activated charcoal?

>

> I think I would hold off on that ASD-Plex until he settles down a

bit.... it's got a lot of Vitamin C in it, which might enhance

diarrhea.... and mag citrate has that effect, too. Maybe wait a week

to introduce it.

>

> What's your " regular probiotic " ?

>

> Florastor is just s.boulardii..... which is helpful against

clostridia infections, if you suspect that. I have not heard of it

being used to " eat yeast " , but maybe others know more about that. I'm

not entirely sure the Florastor product is completely SCD legal....

it was really hard, from their website, to find out what other

ingredients were in it. You'd have to read the actual product label

to make sure.

>

> Patti

>

>

>

> Re-started Intro on Week 4 - Vomiting, Runs

& Mucus?

>

>

> We restarted the intro diet, as our son still has the loose

stools,

> even after removing the almonds, cashews and nut flours. We

started

> it again the day before yesterday, Tuesday. Both Tues and Wed he

> wouldn't eat anything except a broiled beef patty. I did give him

one

> tsp of goat yogurt yesterday morning, to see if we could work

that

> in.

>

> Then, yesterday at naptime, he had a " blow-out " stool in his bed,

and

> smeared his feces all over the inside of his bed (a modified bunk

bed

> of sorts). I had only HEARD about this wonderful thing, until

now. :-

> o It was very runny, and super foul smelling. He has had super

> horrible gas since then, and non-stop " runs " , all like water

> consistency. He wouldn't eat anything for dinner, except apple

> cider/water (the only drink we give him now). Then last night, he

> started coughing badly at 2am. I went in, and he vomited several

> times over the next hour & 1/2 with him. He seemd to be cramping

> badly too, or maybe just naseous? He kept crying in spells, then

> seemd ok, crying, etc. We gave him some homeopathic Ipecac

(didn't

> work), and then gave him Zofran (we had on hand). That seemed to

help

> quite a bit. Then again at 5am, same thing. We got through it

with

> the homeopathic Ipecac, and he finally went to sleep an hour

later.

> Today, he has eaten nothing at all. Only apple cider/water. No

more

> vomiting though. His stools TODAY have all had LOTS of this wierd

> mucus in them, and are all just watery. He won't eat his broiled

> chicken patty tonight either. Poor thing. :-(

>

> So, is this a virus or really BAD yeast die-off from re-starting

the

> intro? What on earth? This mucus is strange, and so are the

watery

> stools that smell so wierd, (dh says wierd septic tank smell, I

think

> vinegary too). Also, his vomit last night was a rust color

(nothing

> he ate?) that I first thought was blood. It was bizzare smell

too.

> His DAN doctor is recommending Florastor to get teh diarhea under

> control for a bit....any thoughts on this probiotic? It is

supposed

> to be a " healthy " yeast that eats candida?

>

> The only things he has had since tuesday are the plain ground

beef

> broiled patties (yesterday and tues had fresh garlic too), apple

> cider/water mix. No supplements since yestreday morning, and then

> just the ASD-PLex, Dha, Jr, and regular probiotic. Any thoughts

> here?????

>

> Also, on another note, we just did the OAT and Yeast Culture

> Sensitivity Test combo. Anyone else doing these? We also did the

> Viral Screen, Panel 3 from Immunosciences Lab that screens for

> cytomegalovirus (read about THIS!), various herpes, Epstein Barr

> virus, etc. Has anyone else done these virus screens, and if so,

did

> you see elevated titers for the diseases? Meleah, I know you

> mentioned doing Valtrex. Did you do viral screens too? Which ones?

>

> Thanks in advance -

> :-)

>

>

>

>

>

>

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<<so we gave in after day 5 with no

food at all and gave him rice crackers and bananas.>>

Ohhhhh...... too bad it could not just have been ripe bananas, and not the rice

crackers. If you had made any progress toward killing off bad guys in his gut,

this may have undermined your efforts. Ripe banana was actually included on the

original diet invented by Dr. Haas, so that would have been okay.

But... you're saying that the bananas are causing him problems now?

I'm really confused about the rest of your post. You're saying he " can't digest "

anything except meat? Do you mean that EVERYthing else but meat gives him

diarrhea? Even before this viral illness hit??

I imagine a kid with a really badly damaged gut will have problems digesting a

lot of things, but we can work around some of those picky sensory issues. Will

he accept something like a smoothie..... something cold? How about coconut

milk....... have you ever tried it?

It sounds to me like you need to get some private counseling help. SCD

counselors can work with you by phone.... check pecanbread.com.

Patti

Re: UPDATE: Re-started Intro - Vomiting, Runs & Mucus?

Ok, sorry for the delay in getting back but we have had this HORRIBLE

virus (maybe rotavirus) run through our family the past 8 days that

has been pure HELL! So, YES, it was a virus (maybe some die-off too)

but it had my husband and young daughter vomiting and having

horrible " blow-out " diarrhea right around Christmas (Merry

Christmas!). Ugh, what a horrible holiday. :-( Everyone got better by

yesterday except for Ben, whose virus turned into a cold/flu with

this new horrible cough when he is in bed at night.

While he was so horribly sick and vomiting, I couldn't give him meat

patties, or any other intro food, so we gave in after day 5 with no

food at all and gave him rice crackers and bananas. He was screaming

for food, and I was not going to starve my poor, sick child. The

intro was not going well anyway, as he won't eat meats anymore (got

tired of them from before), won't touch cooked fruit (texture

issues), won't eat jello (texture issues), won't eat hot liquids

(soups, etc), can't digest nuts in ANY form, can't have dairy (or

goat's milk...we tried), or ANY eggs, and " crazy " stimming behavior

and violent tantrums with bananas apparently. He now " cries " for

bananas, a really BAD sign. His behavior has been very " on edge " and

more tantrums since the bananas and rice were added in 3 days ago.

HOWEVER, there has been MAJOR improvement in those same three days,

especially last night, when he actually ASKED for food! Several

different things, but directly to me. So, I am even more confused.

After our initial intro diet a month ago, we got formed stool on day

3 - day 5, then never again. He absolutely cannot digest ANYTHING

besides the broiled meat patties. So, how on earth am I going to

continue this diet? I know the diet has been doing great things for

him, when he would eat the meat patties, and even during the

continued diarhea (the rest of the first month), but if we are going

to have the diarhea regardless, then why do the diet? I mean really,

WHY? If the gut is not digesting ANYTHING, then why give all the

nuts, etc. that he can't digest when he could be doing the same thing

with say, tapioca flour, and be much happier? UGH!!!

I am just SO frustrated, with no help locally. I can't seem to find a

dietician that knows the diet here that is local, so I am ready to

give up. I work so hard for this diet, and he still has the horrible

stools and gut pains. We are waitig to get back the tests that will

tell us which antifungal would be the best, as well as antivirals, so

we plan to start those as soon as we have the information we need.

And maybe with the horrible shape that Ben's gut is in, that those

will be the answer to helping this diet work better for him. Does

anyone have any thoughts, suggestions?

Thanks -

(mom to Ben, 3 1/2 ASD)

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