Marcia's reply regarding student progress

[Guest guest]

Marcia, you are so right; our child wcf was totally dysgraphic, mercifully

was taught to type--eventually learned to print--and shall we say, eventu

ally caught up with self and passed like lightening and finished college

early--you just never know; you are so right about the child progressing

in relation to the postition from which the child began! Love, n

Rojas

is going to be held back in

kindergarten/health update/ long post

Hi all, well it looks like is going to repeat kindergarten, I am ok

with that. At first I was quite upset with the idea but after thinking about

all that is going through right now it was for the best on his part.

As

you all know has several issues other than just cystic fibrosis. For

all that do not know, has Adhd, motor coordination of a three year

old

and he is almost 6 years old, and a rare eye disorder. I have 's IEP

revision on March 3, I already wrote out my concerns and already gave them

to

the coordinator so they know what to expect on my part. I remember his last

IEP

meeting I was not really given a chance in addressing my concerns but this

time I was prepared. I feel that will benefit a second year in

kindergarten, he has now just started grasping sounds of letters, his

coloring and

writing are not where they need to be and that's because of his delay in

motor

coordination. This is one of my concerns for him in school, is

attending

an occupational therapy once a week at Arnold Palmer Rehab for the next 4-6

months, but I feel that just isn't enough. I want the school to also help

with this delay, this is a three year delay, that's a big issue. As for

speech we are still waiting, I finally decided that it was taking to long

within

the school, so I went to ;s ped dr and got a referral to the speech

rehab

over at Arnold Palmer, its in the same place as the occupational therapy.

When we were there last week was talking to his therapist and she

said he

was doing great and he replied I know I fart, now it took me a few seconds

and a few questions to figure out what he was talking about, my first

thought

was that he had passed gas, by the way he likes to share that with the

world, so

i told him we don't talk about those kinds of things and he said no

mommy, not that, you know when you really good at something and people call

you

this. At that point I knew he wanted to say smart but could not pronounce

the

sm sound, I felt upset because he clearly wanted to communicate that but it

didn't come out that way, the therapist agreed needs speech also. So

we

should have an evaluation soon and set up a weekly appointment to address

his

speech and still be waiting for the school to set up their evaluation. I

know

the school has a lot of kids and their issues but, I can't sit back and just

wait. I have to do what's necessary for my child. As for 's health,

he

finished his cipro and tobi, he is doing so much better but he still has a

cough at night and he still tired, I have had to pick him up from school

early

because he keeps falling asleep, yesterday he fell asleep in the cafeteria

while

eating lunch, this has me concerned. His teacher recommended just

going half day so his body has time to recuperate from all the stress it has

been

under, at least until spring break is over. I am still waiting to hear from

the coordinator about doing that, I know is better but do you think

this could mean the pseudomonous is still there. I am going to call his cf

clinic

and ask if this is something that needs to be addressed. Well I have rambled

on enough but I will keep you all posted, TTFN

, mommy of almost 6 years old w/cf/adhd/etc. and

almost

3 years old no cf