Think I have to prove myself over again

[Guest guest]

Hi everyone,

I got out of hospital on Monday night. I was only in for one night,

but just have been busy and not felt like posting as of yet. Just

when I thought it was all over and behind me, it starts again, and

having fired my old GI because of his lacksidaisle attitude and how

nothing is urgent, I didn't know whether to go through my new GI or

my oncologist...the latter because it is definitely something to do

with my surgery or FAP which is causing these further pains.

I couldn't contact my GI as it was on a Sunday, and their machine

said to just go to my local hospital, then rang my oncologist and

the doctor on call just did it as a direct admit for as soon as I

could get down there.

The medical student who came in did think it was my liver. She

measured the bottom part of it and thought it was extremely

enlargened. Then she brought in the chief resident who was actually

in on my last surgery, and he told her that where my abdominal

muscle has been removed, it has lessened the support that keeps my

liver tucked up under the ribcage, and my liver has dropped, so part

of it can be felt about 4 inches below my ribcage...I'm thinking

perhaps the main source of my pain is caused by my sweatpants, even

my underwear pressing around that area and is pressing on my liver.

They didn't say yay or nay about my observation.

My amylase & lipase were normal they said, and they found that I had

a UTI, but I thought this strange considering they didn't take a

urine sample, and I've not had any burning, pain, and/or blood in my

urine as I've had any other time I've had one...thank goodness was

only 3 times in my lifetime so far.

and my insurance case manager both thought it strange that

they could determine that by bloodwork, and seem to agree that

perhaps the patient with the UTI is still not being treated and has

been told they have abnormal A & L levels *L*

I am worried that I will have another upward battle on my hands,

getting doctors to believe that it can happen without showing

abnormal bloodwork, and I just feel too tired to want to have to

start from the beginning again.

I found out that Cleveland Clinic have an excellent Pancreas

department and the GI doing my EGD for pre surgery testing is well

versed in both FAP and Pancreatitis and she will discuss this with

me when I go up there in Feb to see if I lose the remaining 8 inches

of my colon.

This is also a worry on my mind at the moment because it's not going

to be pretty for the 12 months or so after.

....Thanks for posting that message on the board, I

appreciate it...