Re: Re: Families--To Chrisssy

[Guest guest]

Thank you Chrissy for the well wishes. That was the first time in almost three

years that I didn't suffer from pain after eating fast food. I couldn't believe

it. We eat at home 95% of the time. My husband loves to eat out.....all that

fattening, greasy food. Captain D''s was his favorite....YUK! But now he

suffers from gout and he knows if he eats too much of that kind of food, he'll

be in pain. And he's a big baby when it comes to pain!

I have never had anything done to my sphincter. I have an appointment with a

gastro at the end of the month. I have other problems too, autoimmune hepatitis

and a blood disorder. That has taken preference over the eatting problems. But

it is that pain that gives me more trouble than anything else. Maybe this doctor

will listen to me.

I have had enough surgeries in my lifetime. My hematolgist said it would be the

last thing he would do to me because I don't react to things, like meds, like

everyone else does. He says I'm weird.............ever been called weird by a

doctor!

Chrissy.........all my prayers and best wishes are with you.

Warm thoughts..........Pam ga

wrote:

Sometimes just getting out of the bed in the morning can become

excruciating. I really look forward to having some peace. I had a

tranduodenal sphincteroplasty for my sod and it worked like a

charm. Unfortunetately it was too little too late, the surgeon saw

how my panc had atrophied. It may be a good option for you. You

are obviously putting out enzymes since you were able to eat that CB

without having horrible pain. That is actually agood sign. The

damaage may be just at the sphincter and your pain is related to how

the ssphincter responds to what and when you eat. Sometimes I

think " when " plays a very large part. If you have been eating well

for a while, then eat " bad " and have no horrible outcome your

sphincter must be responding appropriately at least sometimes. Have

you had your sphincter treated in anyway? You might respond well to

repetative stenting. I couldn't eat a wendys burger and live to

tell about it....lol. However I have made homemade and do ok. But

I am in constant pain, so it is just degrees of what I can tolerate

at this point. Next week will tell all; I will either get well or

not. Wheewww no stress there....lol.

I wish you a life time of cheeseburgers without pain.

Warmly,

Chrissy

>

> I totally agree chrissy! Hubby said a while back " Boy, you sure

> seemed to have changed since you've been on these medications! "

I'm

> sure he meant for the worst!! You feel bad, and don't want to say

> anything and try to keep it to yourself! Sometimes I would sit

down

> at the dinner table and just start crying because of the worry

about

> them. I'd say " So, who's going to care for you guys when this

> really gets bad? " They say to just take it one day at a time! I'm

> trying to be stronger if possible, but I notice it worsening as

time

> goes by! Barely finished dinner last night (son made a

SPECTACULAR

> zucchini parmegian!) and had the worst pain at right side of

> pancreas! It dissipated after a while, thank goodness! May have

to

> commence taking more enzymes -- only take 2 Creon per meal now. I

> read what some of you all have gone through, and it worries me to

> death thinking about it. Help us all Lord!

>

> Suzyq

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