Update on and some Venting

[Guest guest]

Hi everyone,

I know I have been a lurker for a while but I wanted to let everyone know

what was going on and I just had some venting to do and I know that you

would listen. I am mostly handling the pain. I have only had one ER visit

lately but the pain gets bad at times. Especially right now. I haven't

been able to sleep all night long. You would think with the meds that I am

on I would be in LA LA land as my mom puts it but there are times that I

just can't sleep and tonight is one of them. It doesn't help when you have

a bad headache either. But I am hanging in there, taking care of my niece

and taking it one day at a time. I am also going to have surgery on my knee

March 25th because my knee cap is out of place, plus I have arthitis in that

knee.

Now for the venting. Please forgive me for making this long. I went this

week to try to get some help with my light bill. I went to a Christian

charity hoping and praying that they would help. It takes a lot for me to

go ask someone for help especially outside of my family. I have been out of

work for over two years now and when I had to give up work it was heck for

me as I know it was for some of you on this list. I loved to work. Even

though I was sick with this disease, I hardly ever missed work unless I

wound up in the hospital. So what I was told by this Christian charity

really upset not only me but my mother as well, because she is also disabled

and knows how it feels not to work. The past two months we have had trouble

with our car. Because of the car messing up we were short on money for our

bills. I explain to the volunteer at the charity what had happened and why

I needed help. I was then told that I needed to find a part time job for

times like this when I am short on cash to pay the bills. As I tried to

explain that I can not work do to the fact that I usually am in and out of

the hospital every 6 months or more, this person told me that there are

people who have what I have and what my mother has and are still able to

work. That upset me but I didn't say anything else. I was told that they

could help me with the light bill as long as I brought in a receipt showing

where I had the car worked on. They said that they needed it because they

had people that came in and lied but he knew I wasn't lying but they needed

the receipt. I asked him before I left that if I couldn't find the receipts

that would it be all right for my brother who did the work on the car to

write up a receipt and sign it. This guy told me that would be fine. So

since we couldn't find the receipts that is what I had my brother do. The

next morning I went back to the charity and gave them the receipt. The

woman at the counter looked at me and asked me what was this. I explain to

her what the gentleman had said to me. Well she went back and gave it to

one of the heads of the charity. She called me back there and explain to me

that the receipt wouldn't work. I asked her then why did the guy tell me it

would. She said he shouldn't had said that. Then we I told her that he

made me feel like a 3rd class citizen the day before she was like he isn't

like that you took it the wrong way. I also tried to explain to her why I

wasn't able to work and she went, " Well I have just survived Breast cancer

and worked all the way through it and the only time I missed work was when I

was to sick from chemo. " That was basically the final straw for me. I told

her she could keep their money and got up and left. Once I got home and

explained things to my mom she got upset and went back up there with me.

This time we talked to the head director and when my mom tried to explain

that the type of meds that I am on, I can't work and there are days she

doesn't feel like getting out of bed but she does for her granddaughter, the

woman pipes up and says, " I take pain meds also and I get up and work. "

Then she informs us that the gentleman I talked to the day before was out of

a job and that all their volunteers had been in the same situation at one

time before, my mom told her that they did not have a christian attidude if

they make people feel like a 3rd class citizen. The woman told us that if

we went and got the receipt that she would help us and my mom told her that

we didn't want their money she just wanted to let them know how their people

treated other people. As we were walking out the woman told me that if I

changed my mind that they would still help me. I wouldn't take their money

now if my life depended on it. I go through a lot everyday because I can

not work anymore and there are some people that look at me and go you are

too young to be disable. I hate the fact that we have to stretch to make

ends meet and I can't work. I miss working in the public but I know right

now I can't.

Sorry to have vented for so long. Thanks for listening to me.

in Sumter, SC

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